United Brachial Plexus Network

<r>Brenda...Joey is 10 years old. Actually, if this is Brenda Copeland-Moore, you were one of the very first people I ever spoke with that understood brachial plexus injuries and put me on the track towards treatment for Joey way back in the beginning! I saw the National Support Group listed in a ma...

Hi Brenda! Our son, Joey, has an appointment on June 10th with Dr. Kozin. Maybe we'll see you in the waiting room! ~~Joann

<r>Hi Dawn! You should ask your pediatrician to refer you to a pediatric neurologist...preferably one that specializes in brachial plexus injuries. That dr. can do a test called an EMG to determine if there is nerve damage.<br/> <br/> We have an almost 10 year old little boy with this injury. I only...

<t>We have a son with a bpi from birth; however, a friend of my husbands suffered a bpi from a virus over a year ago now. Slowly...very slowly he has regained some strength but it got worse before it started getting better. He actually lost use in both his arms. He is still not at 100%. It is a long...

Thanks for jogging my memory Rich! Actually it was posted A YEAR and 2 months ago! ha A friend of my husbands developed a bpi from a virus and I was looking for a specialist for him who specializes in adults. I was shocked when I saw my name on there and knew it had been a while!

I was surprised to read that Dr. Kozin did this procedure. We recently saw him at the PA gathering. Dr. Shenaq has recommended this for our son but Dr. Kozin told us there wasn't enough evidence to prove it would help. hmmmmm

<r>It's been a lonnnng time since I've posted on here but since I'm logged in I may as well post here too! <E>:o</E>) I'm Joann...Mom to Joey. He's 9 years old and has had 4 surgeries at TCH with another one recommended. He can get his arm to about 100 degrees up...has poor external rotation and his...

Kimberly, My son was playing gameboy with one hand in his hospital bed when he was 7 years old after his last surgery. If she's determined she'll find a way! God bless!

There is a message posted with my username but I didnt post it. Very odd. Have the usernames and passwords gotten mixed up somehow?

Ok...this is weird....that is my username on that post but I didn't post that message. hmmmmmm