United Brachial Plexus Network

Ive noticed there are some new people here posting in different places. Its hard to keep up with whos-who. So lets ALL introduce ourselves.

I am Priscilla, mom to James age 12-RTBPI.

Great idea!

I'm Cherie, mom to Sarah (almost 2 - ROBPI), and wife to Jason. We live in Arlington, TX.

I am Melissa Medlin, wife to Jeramy Medlin, and mother to Nolan 15 months, and Zoe 2 1/2 who has a ROBPI.

This is a great idea!

We have a beautiful baby girl, 1 1/2 years old, robpi.

I’m Julie and I have been a lurker on the boards for the last year.
My husband and I have a beautiful daughter Libby who is 14 months old, ROBPI and has had an amazing recovery.
Thank you to everyone who posts, it has helped us to get through this last year.

Hello all. I'm Tanya, mother to Amber (ROBPI) who will be 2 in November. I'm also mom to Casey (9 1/2 years old). We (including my husband, Sean), live in Upstate NY.

Tanya in NY

I'm Michelle, mom to Jessica, 13 months old (LOBPI)

Kate, mom to only child Joshua 8.5 months old, LOBPI. Joshua had probably C5-C8 and possibly T1 involvement; C7-T1 recovery by 2 months old, biceps (hand-to-mouth) at 5 months old, surgery free so far but secondary surgery is likely in the future.

We are currently watching and hoping for deltoids to kick in; otherwise, nerve transfer surgery sometime this year is a remote possibility to try to get some signal to the delts. According to Dr. Waters this surgery has "variable success" with "variable indications" for who should have it... not exactly what you want to hear about a surgical procedure

I deal with the stress of waiting and not knowing what will come in and what won't by obsessively researching anything remotely applicable to my son

Kate

I am Lisa, mom to Michael age 5 1/2 months-ROBPI.