United Brachial Plexus Network

<t>Is she able to move her arm back down after she puts in above her head? How is she doing with the exercises when she is at OT and when you are at home? Your OT should be able to recommend/provide a splint to help keep her wrist elevated (or in a neutral position) so as the muscles of the wrist ar...

<t>Guest, I think your opinion of our children chosing to come to this world with this injury is outrageous. I think a better statement would be we had doctors who chose not to practice the standard of care in delivery. A higher power has something in mind for us and them as a result, but I do not t...

Is this procedure being performed primarily by Drs Kozin and Waters, or others beginning to realize the benefits of this procedure too and also performing this surgery?

We have a beautiful baby girl, 1 1/2 years old, robpi.

YEAH PEYTON!!!!!
I bet you both are so happy to have this part of the journey over. Splints after surgery are so hard to deal with. How is Peyton feeling?

<t>Okay, this may sound silly but I have to ask. We have noticed this past month that our daughter likes salsa (not really hot, just Pace Picante mild). And then yesterday I had a french fry which I thought was still a bit warm for her mouth (she is 13 months old) but she grabbed it and was fine. So...

<t>Nancy, yes I think I can picture what you mean and when I tried it out on myself me arm does feel like the muscles have a chance to rest in this position. Thank you all for answering this post and shedding some light on this for me. I'm curious to see if it continues as she gets older-now I will ...

Thank you, thank you all. This is exactly the kind of information I was looking for. I have a much better idea now of what I need in a medical bracelet and where to find one.
Thanks so much!

<t>Thanks Kath, I agree it's nice to know that her actions are normal. Sometimes I try an take what's in her hand when she is waking because when she falls forward she is not able to get her bp arm out fast enough to cushion her fall (even without the item in her hand but I we are working on it). Ha...

<t>Guest, when I spoke to medicalert they said they will help with the info to put on the back of the medallion. What info fit? I think we are going to have to go with the children's link bracelet first because of our child's young age but then move up to the sport bracelet. Does your child were it ...