Question about scoliosis
Question about scoliosis
Hi,
I was wondering if anybody's child had been diagnosed with scoliosis. I had a few questions about it.
Did you rely on your regular pediatrician for a diagnosis, or did you go to an orthopedist? What were some of the indications that there was a problem? Did your child have other secondary BPI issues that went along with the scoliosis? And at what age did your child get diagnosed with scoliosis?
Thank you so much, in advance, for your help.
Janet
I was wondering if anybody's child had been diagnosed with scoliosis. I had a few questions about it.
Did you rely on your regular pediatrician for a diagnosis, or did you go to an orthopedist? What were some of the indications that there was a problem? Did your child have other secondary BPI issues that went along with the scoliosis? And at what age did your child get diagnosed with scoliosis?
Thank you so much, in advance, for your help.
Janet
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Question about scoliosis
My Pt checked me for it last year. No one ever mentioned the fact that I have mild scoliosis before.
But then again they never mentioned my arm unless I did and then brushed it off as if it was no big deal. I did not realize they did not know much about it.
Kath
But then again they never mentioned my arm unless I did and then brushed it off as if it was no big deal. I did not realize they did not know much about it.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: Question about scoliosis
You should see a Orthopidic Surgeon for those concerns. I do recall our Orthopedic Surgeon telling me that Scoliosis is a common probabliity in Children with OBPI and that it is something they will be watching for. I myself have Scoliosis and I can tell you that I have a buldging rib on one side of body as well as that my side or shall i say Left side of my body is larger and stronger than the other. And I do have some minor pain from time to time. Now my scoliosis is mild and affects the Thoracic region of my back and Scoliosis is not limited to only that region.
It is my understanding that exray determines Scoliosis and it should be done every few years.
Good luck
Lenni
It is my understanding that exray determines Scoliosis and it should be done every few years.
Good luck
Lenni
Re: Question about scoliosis
Janet,
We have not been told that Rain has scoliosis, but I have her checked from time to time because I have had scoliosis since I was about 11 years old. I wore the Milwaukee brace as a child and am watching Rain very closely because she has 2 strikes against her already so to speak. I don't know much about scoliosis in children with bpi's but I can tell you what I know regarding myself. Hope this helps.
DeShawn
We have not been told that Rain has scoliosis, but I have her checked from time to time because I have had scoliosis since I was about 11 years old. I wore the Milwaukee brace as a child and am watching Rain very closely because she has 2 strikes against her already so to speak. I don't know much about scoliosis in children with bpi's but I can tell you what I know regarding myself. Hope this helps.
DeShawn
Re: Question about scoliosis
Thanks, Kath and DeShawn. I'm sorry about your scoliosis, but it's helpful info to know about.
Lenni - You're right about seeing an orthopedic surgeon. I'm not sure if we've seen surgeons or not. I've taken Danny to two orthopedists because of his intoeing/hip issues and no one mentioned scoliosis. But knowing the risks at work, I want to keep on top of the issue.
Thank you!
Janet
Lenni - You're right about seeing an orthopedic surgeon. I'm not sure if we've seen surgeons or not. I've taken Danny to two orthopedists because of his intoeing/hip issues and no one mentioned scoliosis. But knowing the risks at work, I want to keep on top of the issue.
Thank you!
Janet
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: Question about scoliosis
Back in middle school they meantioned I had it, but no one ever pursued it anymore after that. Maybe I should sometime. Once again, I guess I'm not alone.
-Traci
-Traci
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Question about scoliosis
I wonder if scoliosis could occur eventually with a traumatic injury? If so, how soon or often should it be checked??
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Question about scoliosis
Priscilla
I am not sure but I think it may be possible over time because even the tbpi report the bad posture they have due to compensation and looking for a comfortable position for their shoulders and arms. I am sure someone will know the true medical cause for it and it probably has to to with muscle atrophy and inbalance.
Kath
I am not sure but I think it may be possible over time because even the tbpi report the bad posture they have due to compensation and looking for a comfortable position for their shoulders and arms. I am sure someone will know the true medical cause for it and it probably has to to with muscle atrophy and inbalance.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
