abnormal walking - curved back - related to bpi?
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ColesMama
- Posts: 9
- Joined: Wed Mar 23, 2011 8:34 pm
- Injury Description, Date, extent, surgical intervention etc: ROBPI - Cole is just 4 weeks old, we're new at this!
abnormal walking - curved back - related to bpi?
My son is now 17-months old, born with a bpi to the right arm. He is walking all over the place and has a funny walk. It's as if his affected shoulder is raised higher than the other shoulder, thereby curving his whole trunk and back, and even that hip is higher, and he's developing tightness in the rib area of the left (non-affected) side from leaning that way. His PT says that this is NOT consistent with other kids with bpi's that she has seen, that other kids have had normal trunks with no curving like this when they walk. She's thinking that he might have something else going on unrelated to his injury. I have a hard time believing it's not related, so I'm interested to know if anyone else has experienced this type of walking? I might be able to post a picture somehow if I'm not describing it well enough.
Thank you!!
Thank you!!
Re: abnormal walking - curved back - related to bpi?
That is not consistent with my experience either. There are some who claim that scoliosis is more common in BPI kids, but they are almost always referring to idiopathic scoliosis which shows up after puberty. That may or may not be the case, and most doctors disagree that BPI increases risk for that type of scoliosis. But something showing up at 17 months old is not common. I would definitely look into it ASAP, as scoliosis which shows up that early is almost always associated with spine deformities which make the spine grow abnormally. If that is the case, the earlier the treatment the better.
Kate
Kate
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: abnormal walking - curved back - related to bpi?
Hopefully, you will be able to get an Evaluation with a BPI Specialist soon for your son. At least 2 Consultations have usually been recommended on earlier Topic Threads on these Forums. There is a Medical Resources Link on our home page.
....And Welcome to our UBPN Family "Colesmom". you are welcome on all Forum messages Boards. There isno such thing as a dumb question except the one not asked.
Carolyn J
LOBPI/74
....And Welcome to our UBPN Family "Colesmom". you are welcome on all Forum messages Boards. There isno such thing as a dumb question except the one not asked.
Carolyn J
LOBPI/74
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brittwitt
- Posts: 26
- Joined: Wed Sep 07, 2011 2:37 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI
Injured at birth. Moderate injury with no surgeries. - Location: Austin, TX
Re: abnormal walking - curved back - related to bpi?
I have a moderate LOBPI and have pretty bad scoliosis. I wore a back brace for awhile in high school but haven't needed surgery. I lean towards my injured side and my spine makes an "S". I lean that when all the time: standing, walking, sitting. My posture is way better after I started strengthening my core muscles though. My affected shoulder is much lower than the other, instead of higher like your son's. I think I was diagnosed around 4 which is pretty young as well. I saw a doctor that specialized in scoliosis. I always believed that the injury to my arm caused the imbalance and curvature of my spine, but since I saw different doctors for each problem I never really got a confirmation that one caused the other. Maybe see a spine doctor about this issue? Treating it now could stop it from getting worse!
-Brittney 20, LOBPI
-Brittney 20, LOBPI
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ColesMama
- Posts: 9
- Joined: Wed Mar 23, 2011 8:34 pm
- Injury Description, Date, extent, surgical intervention etc: ROBPI - Cole is just 4 weeks old, we're new at this!
Re: abnormal walking - curved back - related to bpi?
Thank you for responding! The more I look at him, it seems as if his affected shoulder isn't really raised, but he definitely has a curve around the left rib cage/spine. The PT did mention scoliosis, too! Interesting that there may or may not be a connection with his bpi injury. We have a follow-up with his BPI specialist in September, so I will probably wait until then to see who he recommends I take him to in order to look into his spine for deformities. His ribs also splay outward. It seems as if the more I researched this site and talked to parents with kids with bpi's, the more I realized it probably isn't related. I'm hoping he just needs a back brace like you, Brittney! I don't know anything about scoliosis - so more research begins! 
Karyn
Karyn
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: abnormal walking - curved back - related to bpi?
((((((((((((((HUGGZ))))))))))))))) for Cole & you too, Karyn.
"gramma" Carolyn J
LOBPI/74
"gramma" Carolyn J
LOBPI/74
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ColesMama
- Posts: 9
- Joined: Wed Mar 23, 2011 8:34 pm
- Injury Description, Date, extent, surgical intervention etc: ROBPI - Cole is just 4 weeks old, we're new at this!
Re: abnormal walking - curved back - related to bpi?
Thank you, I do need the hugs right now! I've been researching and the pictures look just like him. 
Poor little guy seems to have enough to deal with!
Poor little guy seems to have enough to deal with!- Attachments
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- My little man and how he stands.
- IMG_5454.JPG (119.31 KiB) Viewed 6436 times
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: abnormal walking - curved back - related to bpi?
he is adorable. you are doing an awesome job with him.
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Tuckersmommy
- Posts: 57
- Joined: Fri Jun 04, 2010 11:47 pm
- Injury Description, Date, extent, surgical intervention etc: My son was born At Parrish Medical Center in Titusville,Fla.After becoming stuck in the birth canal A doctor(any doctor)was paged 911.Believe it or not There was NO Obgyn on staff to preform a delivery,so a midwife and one other nurse had to deliver my son.He suffered 2 torn nerves and came out lifeless...
We see Dr.Grossman In Miami along with Dr.Price.He has had a nerve transfer in 2010,A round of botox and a recasting in 2011 and now we will having another round of botox in which we pray no cast will be needed.He is a smart handsome little boy who has come so far and everyday I feel he's improving! - Location: Port Saint John,Florida
Re: abnormal walking - curved back - related to bpi?
He is indeed VERY cute...sorry to hear of your problem 
Life is a dance~We will all learn it as we go
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ColesMama
- Posts: 9
- Joined: Wed Mar 23, 2011 8:34 pm
- Injury Description, Date, extent, surgical intervention etc: ROBPI - Cole is just 4 weeks old, we're new at this!
Re: abnormal walking - curved back - related to bpi?
Hey everyone -
I just remembered that I had wanted to post a follow-up to this, in case anyone searches this issue in the future. Cole's back was x-rayed by the top scoliosis specialist out here, and his back it straight as an arrow. So what seems to be the case is that he is doing some sort of compensation for his arm that is not typical for his injury, but it just how he has developed. We don't really have a great answer, but it does seem to get better as he grows.
Karyn
I just remembered that I had wanted to post a follow-up to this, in case anyone searches this issue in the future. Cole's back was x-rayed by the top scoliosis specialist out here, and his back it straight as an arrow. So what seems to be the case is that he is doing some sort of compensation for his arm that is not typical for his injury, but it just how he has developed. We don't really have a great answer, but it does seem to get better as he grows.
Karyn
