United Brachial Plexus Network

Maybe contact this person, and let them know your troubles and you would like to talk with him. Do the email, then at least you have a "paper trail". Public Relations Stephanie Byrwa 215-430-4178 sbyrwa@shrinenet.org Also, we go to Cincinnati Children's and they are wonderful! The Brachial...

If you or your child were born in Iowa with an OBPI we would like to invite you to join our facebook page for support, and the fight to have these injuries required to be reported in Iowa.

Hope to see you soon!
Lisa

https://www.facebook.com/groups/897755066984603/

If you or your child were born in Iowa with an OBPI we would like to invite you to join our facebook page for support, and the fight to have these injuries required to be reported in Iowa.

Hope to see you soon!
Lisa

https://www.facebook.com/groups/897755066984603/

Finnley has come a long way and is actually crawling despite her LOBPI. However, she is still limited in ROM and holds her elbow bent with her arm in toward her chest alot. Because of this she is still very tight. The doctors did decide to do botox in three muscles and put her in a night cast to str...

see my post in the "Share your story, family and friends" forum. Cincinnati update. We were very pleased with our first appointment there. (Cincinnati Children's Hospital)

WOW! That is an amazing place and we are so grateful we went. We met with a team of 5 or 6 people, it was overwhelming but wonderful. The doctor/surgeon, the nurse, the dept. manager, the social worker, and some others. Of course they did a few things baby didn't like, but they were very detailed. T...

Finnley is now 3 months old. We have been doing therapy since six weeks. In the last month She has begun having movement in her bpi arm. It is not fluid but she is adapting her working muscles to get it moving. Our local surgeon said the usual, there is progress come back in 3 months. We are so glad...

I am Lisa, grandmother to Finnley. She was born in February with a broken collar bone, then a week later diagnosed with Erb's Palsy. She is rolling her shoulder and has a great finger grip, but no elbow bending on her own. We have been told by our local pediatric surgeon to "wait and see, most ...