United Brachial Plexus Network

Cole started walking officially at about 16 months. He walks a little funny, but his arm hasn't slowed him down at all as far as gross motor skills compared to his peers. At 15 months, your little guy is still within normal limits for kiddos with no injury!

Hey everyone - I just remembered that I had wanted to post a follow-up to this, in case anyone searches this issue in the future. Cole's back was x-rayed by the top scoliosis specialist out here, and his back it straight as an arrow. So what seems to be the case is that he is doing some sort of comp...

Thank you, I do need the hugs right now! I've been researching and the pictures look just like him. Poor little guy seems to have enough to deal with!

Thank you for responding! The more I look at him, it seems as if his affected shoulder isn't really raised, but he definitely has a curve around the left rib cage/spine. The PT did mention scoliosis, too! Interesting that there may or may not be a connection with his bpi injury. We have a follow-up ...

My son is now 17-months old, born with a bpi to the right arm. He is walking all over the place and has a funny walk. It's as if his affected shoulder is raised higher than the other shoulder, thereby curving his whole trunk and back, and even that hip is higher, and he's developing tightness in the...

Thank you so much for replying! We saw Cole move his arm outward before flinging it onto his body (usually just rolls it inward) and we were ecstatic, but he hasn't done it much since. We are just so wanting him to heal, like any parent, and hoping that he does so without surgery. Poor little babies...

We have a 9-week old sweet little baby with upper obpi and we are just wondering if there are things to look for that indicate that healing is happening? He seems to have some days where he might be in a great deal of pain, and I'm wondering if it might mean that healing is close to happening. We ha...

I'm sorry that I don't have any tips for you, because I have a baby with BPI. But I'm thankful you posted, I'm always interested to learn what it might feel like to him, since he can't tell me in words. I hope you do get answers, and I really hope your arm will fully heal!

Just wondering if you ended up visiting the clinic in atlanta and if so what you think? We have an appt there next week.