United Brachial Plexus Network

:o Ok Mommies/Daddies. My soon to be 4 year old daughter will be starting 4K this August. (She actually will turn 4 in August) She has a pretty severe injury. She still has not regained any hand, wrist, or extension. So I am starting a list of anything and everything to prepare the teacher, school, ...

Thanks Francine for this info. My daughter's PT is really big on the e-stem. We try to use it for atleast 4-6 hours a day. She showed us how to put them, but always wondered if we were doing it correctly. I will be looking on the website you provided.


Alexis

Thanks, I appreciate it.

Hello, I recently reapplied for SSI for my 22 month old daughter. She has a ROBPI, with no movement in the wrist, hand, or fingers. She is just really getting her shoulder and some biceps in. My question is, I reapplied (due to a denial the first go around) for SSI and was wondering if the amount th...

Thanks for all of the info. I too was wondering about this dilemma as we will be in the same situation with our daughter in a few years. She will be two in August and still has no wrist hand or finger movement (yet). I am trying to get ideas now on how to help her do things one handed, for now, espe...

I applied for my daughter within the first month or so of her birth, about six mos later I got a reply .... DENIED... I don't understand, they said she doesnt qualify.. She has no use of her right arm.... This upsets me as well. It's so frustrating. I'm thinking of re-applying, does anyone have any ...

How can I obtain or view a copy?

My now 10 month old daughter has ROBPI. We met Dr. Kozin back in December and all I can say is "LOVE him". You can tell he really loves what he does (and his team). His bedside manner is awesome and couldn't ask for anything more? God really created an angel when he created Dr. Kozin. Anyw...

Not a problem. What I was asking if anyone has ever spoken or dealt with any attorneys that have made "posts" or that have responded to their posts here on ubpn.

Does anyone have any personal experience or know someone that has dealt with any of the attorneys that have made their presence here at ubpn?