Injury Description, Date, extent, surgical intervention etc: Daughter born 8/16/10 has OBPI in the right arm....First surgery(nerve graft) done at 5 months(performed by Dr. Kozin).... four avulsions, one rupture (at the spine)..... As of 4/9/11 still no movement in arm, wrist or hand. As June 2013, bicep, elbow, shoulder function active, flexing with gravity, still no wrist or hand/finger function.
Ok Mommies/Daddies. My soon to be 4 year old daughter will be starting 4K this August. (She actually will turn 4 in August) She has a pretty severe injury. She still has not regained any hand, wrist, or extension. So I am starting a list of anything and everything to prepare the teacher, school, and myself for this up coming school year. I am a little nervous. Not that I don't think she will do well but the adaptation of activities, special accommodations that will have to be made and making sure that her teachers will be on the same page. I don't want her to be treated any differently, I am only concerned with her safety. Right now she doesn't know that "righty" is different. Sometimes she forgets about "righty" and that is what is just a little worrisome. I just want to be the best advocate for her. So any ideas or suggestions that I can add to my list would be great. Anything from the bathroom to holding a lunch tray to IEP/504 ideas. ANYTHING! She is one handed so I want to make sure she has the accommodations she needs to succeed. The good thing is its only a half of day so hopefully it will be a good transition. Thank you in advance.
Our Mission Statement The United Brachial Plexus Network strives to inform, support, and unite families and those concerned with brachial plexus injuries, its treatment and prevention worldwide.
Our Shared Vision
Increase AWARENESS of and work towards the PREVENTION of brachial plexus injuries.
Provide SUPPORT for families and individuals affected by brachial plexus injuries.
EDUCATE medical and legal professionals, politicians and the general public on the issues surrounding this disability.
Create and maintain a NETWORK of information and support that will UNITE all those concerned with this injury worldwide.
Articles of Incorporation are available on the Massachusetts State website along with information about our incorporation.
Ok Mommies/Daddies. My soon to be 4 year old daughter will be starting 4K this August. (She actually will turn 4 in August) She has a pretty severe injury. She still has not regained any hand, wrist, or extension. So I am starting a list of anything and everything to prepare the teacher, school, and myself for this up coming school year. I am a little nervous. Not that I don't think she will do well but the adaptation of activities, special accommodations that will have to be made and making sure that her teachers will be on the same page. I don't want her to be treated any differently, I am only concerned with her safety. Right now she doesn't know that "righty" is different. Sometimes she forgets about "righty" and that is what is just a little worrisome. I just want to be the best advocate for her. So any ideas or suggestions that I can add to my list would be great. Anything from the bathroom to holding a lunch tray to IEP/504 ideas. ANYTHING! She is one handed so I want to make sure she has the accommodations she needs to succeed. The good thing is its only a half of day so hopefully it will be a good transition. Thank you in advance.