United Brachial Plexus Network

I sent this to three of my local radio stations today!!! Keep your fingers crossed!!!!! Jill

Hi Shona, Our stories sound very similar! Yes the doctor made bad mistakes and our children suffer from them!!! My Sofia had surgery when she was 6 months old!! Yes, the word surgery had me terrified!! I was on a emotional roller coaster as soon as it was mentioned. I thought she had made some progr...

I haven't been on here for a while, wanted to give an update about my baby. My little Sofia has now turned one!!! YAY!! She is doing awesome with her o.t., e-stem and constrant therepy!! We are still working hard everyday to get the most movement out of her arm!!! She is such a strong willed little ...

Hi mom2ethan! My daughter also has a robpi. She had surgery when she was 6 months old for this. We do constrant therepy 2 hours a day/every day! She does very well with this! It is so they can use thier injured arm more. I have seen a vast improvement with my baby since we have been doing this, but ...

Ugh...Boy I remember those days..our son who is now 9ys old had his first of several surgery starting when he was 4 1/2 months old in Texas. ( We live in NY)..and leading up to it.. it seemed like a blurr everything moved so fast. ( Maybe not at the time). And the entire situation didn't hit until ...

Hi gboyd, my daughter is 6 months old and had 3 nerve transfers on Dec. 2 at Cinn. Childrens with Dr.Foad. She also had a birth injury, ropbi. She weighed only 8lbs 6oz but my ob used forceps and vaccum as he forcefully pulled on her little neck and head! I have spoken to several lawyers about this....

Keep on Keeping on! Our daughter had surgury at Cinn. Childerns at 4months of age. She had similar injuries to your sofie, C5 was completely avulsed and C6 was partially. They performed nerve transfers for C5 and nerve graphs for C6. She is 18 months old now, and we still attend OT weekly and just ...

hope16_05 wrote:So glad that Sophia did well with surgery, I hope the results are amazing! Be patient, it takes a long time to regrow nerves!
Hugs,
Amy

Thanks so much for the encouraging words!

Just an update on my little angel. We had 3 nerve transfers on December 2nd at Cinn. Childrens Hospital with Dr.Foad. My Sofi is doing great! No new movement yet, but we are back in therepy and I understand it will take 3-4 months, give or take, for anything new. My little angel is such a fighter!! ...