My daughter has to have surgery
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sofia's mom
- Posts: 9
- Joined: Sun Jan 17, 2010 8:26 am
- Injury Description, Date, extent, surgical intervention etc: My daughter Sofia was born on July 15, 2009 and suffered from shoulder dystocia and she is a ROBPI. She had surgery at Cinn. Childrens Hospital on December 2, 2009 with Dr.Foad. She suffered avulsion's c5, c6, c7 and had to undergo spinal accessory to suprascapular nerve transfer, fcu fascicle of ulnar nerve to musculocutaneous nerve and triceps to axillary nerve. My baby was 6 months old when she under went surgery!
I am open to answer any questions anyone may have for me at anytime. - Location: Kentucky
Re: My daughter has to have surgery
Just an update on my little angel. We had 3 nerve transfers on December 2nd at Cinn. Childrens Hospital with Dr.Foad. My Sofi is doing great! No new movement yet, but we are back in therepy and I understand it will take 3-4 months, give or take, for anything new. My little angel is such a fighter!! I was so afraid this would scare her personality, boy was I wrong! She is the happiest and the absolute best baby ever!!!!!! I am so thankful for the team at Cinn. Childrens!! Thanks Guys!!! 
Jill, mother to Sofia, ROBI
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EvelynsMom
- Posts: 1
- Joined: Mon Jan 18, 2010 1:45 am
Re: My daughter has to have surgery
Keep on Keeping on!
Our daughter had surgury at Cinn. Childerns at 4months of age. She had similar injuries to your sofie, C5 was completely avulsed and C6 was partially. They performed nerve transfers for C5 and nerve graphs for C6. She is 18 months old now, and we still attend OT weekly and just finished a round of NMES. We could have never predicted her amazing progress.
I thank God every night for leading us to Cinn. Childrens! The whole team there is absolutely amazing!
I think the Ot is the biggest factor in the recovery, at least for us.
Our daughter had surgury at Cinn. Childerns at 4months of age. She had similar injuries to your sofie, C5 was completely avulsed and C6 was partially. They performed nerve transfers for C5 and nerve graphs for C6. She is 18 months old now, and we still attend OT weekly and just finished a round of NMES. We could have never predicted her amazing progress.
I thank God every night for leading us to Cinn. Childrens! The whole team there is absolutely amazing!
I think the Ot is the biggest factor in the recovery, at least for us.
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: My daughter has to have surgery
So glad that Sophia did well with surgery, I hope the results are amazing! Be patient, it takes a long time to regrow nerves!
Hugs,
Amy
Hugs,
Amy
Amy 28 years old ROBPI from MN
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sofia's mom
- Posts: 9
- Joined: Sun Jan 17, 2010 8:26 am
- Injury Description, Date, extent, surgical intervention etc: My daughter Sofia was born on July 15, 2009 and suffered from shoulder dystocia and she is a ROBPI. She had surgery at Cinn. Childrens Hospital on December 2, 2009 with Dr.Foad. She suffered avulsion's c5, c6, c7 and had to undergo spinal accessory to suprascapular nerve transfer, fcu fascicle of ulnar nerve to musculocutaneous nerve and triceps to axillary nerve. My baby was 6 months old when she under went surgery!
I am open to answer any questions anyone may have for me at anytime. - Location: Kentucky
Re: My daughter has to have surgery
Thanks so much for the encouraging words!hope16_05 wrote:So glad that Sophia did well with surgery, I hope the results are amazing! Be patient, it takes a long time to regrow nerves!
Hugs,
Amy
Jill, mother to Sofia, ROBI
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sofia's mom
- Posts: 9
- Joined: Sun Jan 17, 2010 8:26 am
- Injury Description, Date, extent, surgical intervention etc: My daughter Sofia was born on July 15, 2009 and suffered from shoulder dystocia and she is a ROBPI. She had surgery at Cinn. Childrens Hospital on December 2, 2009 with Dr.Foad. She suffered avulsion's c5, c6, c7 and had to undergo spinal accessory to suprascapular nerve transfer, fcu fascicle of ulnar nerve to musculocutaneous nerve and triceps to axillary nerve. My baby was 6 months old when she under went surgery!
I am open to answer any questions anyone may have for me at anytime. - Location: Kentucky
Re: My daughter has to have surgery
Thank you so very much for all the positive feedback!EvelynsMom wrote:Keep on Keeping on!
Our daughter had surgury at Cinn. Childerns at 4months of age. She had similar injuries to your sofie, C5 was completely avulsed and C6 was partially. They performed nerve transfers for C5 and nerve graphs for C6. She is 18 months old now, and we still attend OT weekly and just finished a round of NMES. We could have never predicted her amazing progress.
I thank God every night for leading us to Cinn. Childrens! The whole team there is absolutely amazing!
I think the Ot is the biggest factor in the recovery, at least for us.
Jill, mother to Sofia, ROBI
Re: My daughter has to have surgery
Ugh...Boy I remember those days..our son who is now 9ys old had his first of several surgery starting when he was 4 1/2 months old in Texas. ( We live in NY)..and leading up to it.. it seemed like a blurr everything moved so fast. ( Maybe not at the time). And the entire situation didn't hit until we were in our hotel room and I looked out our window and saw The University of Houston starring me in the face. I remember thinking "oh my god we are in texas"!! I wanted to grab the baby and run.I thought I was going to collapse. Thats when the magnatide of all of it hit me. Strangly enough thats when I found my strength. Be sad, Be grateful, Be angry, be all the things you feel but remember to be strong. you will find your strength. I found mine. And now when I look back I think Wow...You will be in thoughts and prayers. And honey you not alone.
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sofia's mom
- Posts: 9
- Joined: Sun Jan 17, 2010 8:26 am
- Injury Description, Date, extent, surgical intervention etc: My daughter Sofia was born on July 15, 2009 and suffered from shoulder dystocia and she is a ROBPI. She had surgery at Cinn. Childrens Hospital on December 2, 2009 with Dr.Foad. She suffered avulsion's c5, c6, c7 and had to undergo spinal accessory to suprascapular nerve transfer, fcu fascicle of ulnar nerve to musculocutaneous nerve and triceps to axillary nerve. My baby was 6 months old when she under went surgery!
I am open to answer any questions anyone may have for me at anytime. - Location: Kentucky
Re: My daughter has to have surgery
Thanks Karen for the encouraging words!! I am sad, angry, distraut, stressed but am staying STRONG!!! I am so thankful for this website and all the positive feedback!!karan71 wrote:Ugh...Boy I remember those days..our son who is now 9ys old had his first of several surgery starting when he was 4 1/2 months old in Texas. ( We live in NY)..and leading up to it.. it seemed like a blurr everything moved so fast. ( Maybe not at the time). And the entire situation didn't hit until we were in our hotel room and I looked out our window and saw The University of Houston starring me in the face. I remember thinking "oh my god we are in texas"!! I wanted to grab the baby and run.I thought I was going to collapse. Thats when the magnatide of all of it hit me. Strangly enough thats when I found my strength. Be sad, Be grateful, Be angry, be all the things you feel but remember to be strong. you will find your strength. I found mine. And now when I look back I think Wow...You will be in thoughts and prayers. And honey you not alone.
Jill, mother to Sofia, ROBI
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sofia's mom
- Posts: 9
- Joined: Sun Jan 17, 2010 8:26 am
- Injury Description, Date, extent, surgical intervention etc: My daughter Sofia was born on July 15, 2009 and suffered from shoulder dystocia and she is a ROBPI. She had surgery at Cinn. Childrens Hospital on December 2, 2009 with Dr.Foad. She suffered avulsion's c5, c6, c7 and had to undergo spinal accessory to suprascapular nerve transfer, fcu fascicle of ulnar nerve to musculocutaneous nerve and triceps to axillary nerve. My baby was 6 months old when she under went surgery!
I am open to answer any questions anyone may have for me at anytime. - Location: Kentucky
Re: My daughter has to have surgery
I haven't been on here for a while, wanted to give an update about my baby. My little Sofia has now turned one!!! YAY!! She is doing awesome with her o.t., e-stem and constrant therepy!! We are still working hard everyday to get the most movement out of her arm!!! She is such a strong willed little thing and she will let nothing stop her at all!!! Guess she is like her mother! I want to thank everyone for all the support and encouraging words throughout our journey!! Thank you
I want to thank everyone for all the support and encouraging words throughout our journey!! Thank youJill, mother to Sofia, ROBI
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
