United Brachial Plexus Network

<t>My granddaughter who will be 6 years old in March also runs with her left arm (lobpi)held straight down or a bit in front. We can remind her to "pump" her arm the same way as her right arm does, and this works when she thinks of it. She actually is a very fast runner, one of the fastest if not th...

<t>Like Allison-S, I, too, have not posted in a very long time. However, your posting also caught my notice. My granddaughter was born 5 1/2 years ago with a lobpi and had shown no movement with her arm when she had surgery at the age of 5 mo. in Texas. She showed some slight movement about 2 mos. f...

<t>My oldest granddaughter is 3 years old, has lobpi, had two surgeries (primary and mod quad) by the time she turned one year old and has had physical therapy, occupational therapy, aqua therapy, and taken kindermusic, gymnastics, swim lessons, and dance all in order to encourage her to use her arm...

<t>My granddaughter, lobpi, did not learn to crawl until after she was walking. However, she did do a "bottom" scoot to get around before she began walking. She had primary surgery at 5 months and the mod quad at 12 months and not until after those surgeries and a lot of therapy did she learn to cra...

<t>Katie, I don't believe you can go "wrong" with either Dr. Shenaq or Dr. Nath for surgery on your daughter's arm. Go with whoever you feel most comfortable with. I've been reading the information on these message boards for 2 1/2 years now, and I think that surgery to help your daughter's arm is t...

<t>Salina, I am sorry you had such a bad experience going to surgery and then not getting it at the last minute when you know that your baby needs it. As I understand it, the "window of opportunity" for primary surgery is from 5 months to 11 months. Your daughter could still get that surgery, and I ...

<t>My granddaughter (LOBPI) had the mod quad when she was a year old, and we are extremely pleased with the results. She could not raise her arm higher than shoulder level before the surgery but afterwards she was able to lift her arm above her head. She is now 2 1/2 yrs. old and doing very well. We...

<t>Maryville is just a few miles south of Knoxville. I live about 20 miles north of Knoxville and have often driven through Maryville going to the Smoky Mountains National Park. I looked up Unicoi on the map and see that it is right on the TN/NC border, probably close to where you live, Priscilla.</t>

Hi, I am Barbara and my granddaughter Grace is 2 1/2 yrs old with LOBPI. We're in Tennessee too! We live in Oak Ridge just 20 miles from Knoxville. It would be interesting to hear from you, Natalie. My e-mail address is bgritzner@comcast.net.

<t>I'm so sorry that your son Vance suffered a bp injury. But, please don't become a pessimist because you have read the messages on this board. As some of the others told you, it's way too early to make a judgment on whether Vance will recover in a few weeks or not. Possibly, the best advice is to ...