United Brachial Plexus Network

Hi. Welcome to the board. I am new also. My daughter, Miranda, has an ROBPI. She was born March 27th so our girls are close in age.

Carol

I dont understand much about it...yet.

I do know that my 3 mo old will be under sedation for the MRI. I think that is standard for an infant. If I remember correctly I was told that they have to be a certain age to the the CT type of scan.

<t>Thanks so much for the input. We have an MRI scheduled for July 5th.<br/> <br/> I've noticed she is using her arm quite a bit more in the last 2 weeks. I feel happy about this but I also know that there i still a long road for us to go down.<br/> <br/> We are a couple of hours from Orlanda where ...

<t>Her appointment went well. They did xrays. The muscles are pulling her shoulder out. You could see it. He thinks that this will probably correct itself as her muscles improve. We will get an MRI and go from there. He said she is showing some good responses and he doesnt want to do anything until ...

<t>Hi. Im very new to the board. My name is Carol. I am 39 and we live in north FL. I have 2 girls. Anna is 18 mos and was a 32 week preemie (4 lbs 9 oz) and Miranda ( 9 lbs 12 oz ) who is 2 mos old with ROBPI. We have our first appointment on 6/11 with an orthopedic doctor. Miranda has been in OT s...

<t>Thanks for the input.<br/> <br/> She has an appt with Dr Anjeles. Her OT says he is a very good doctor. I have been doing the ROM exercises since she was about a week old. I started doing them on my own. I just did what felt instinctively right. <br/> <br/> I have a BPI injury to my left arm from...

<t>My daughter is 2 mos old and has BPI. She was a large baby and was stuck during birth. Needless to say I'm rather upset that the resident Dr didnt listen to my concerns and that the ultrasound was off by more than 2 lbs! <br/> <br/> We have an appt on June 11th at Shands. I want to know what ques...