United Brachial Plexus Network

Lisa
Are you a doula or midwife? You use alot of doula "termonology"! Just curious. I am happy to hear that you had a great birth experience. Enjoy those girls!! Terri (A Doula!!)

when where and how much?

<t>Thank you for your reply! You put some of my fears into words perfectly. I do think that your reasons that therapy are discontinued are pretty close to accurate in our case although our PT is very willing to step back in if needed. The reasons for discontinuing therapy being that she is on target...

Hope 16-5
Thank you and good luck! I hope you have alot of support for what you're going through now.

m&m's mom
How complete did your child "recover" and what kind of problems do you see now? Thank you for your reply and information. That is exactly what my gut is saying. Take care. Terri

<t>hello! My child is only 16 monthes.I didn't think of iep or 504 until I read this post. Do most bpi kids have them and what do they involve? Does it depend on extent of recovery? Who told you about the 2ndary injury? Makes sense! Now feeling confused and unrealistic about recovery meaning and her...

<t>hi and welcome. my daughter (now 15 months) was born weighing 10lbs 13 1/2 oz with a rt clavical break and lobpi. She is surgery free and has had therapy (ot and pt) since she was 3 weeks. she does very well now after no movement for the first 3 months except for slight finger movement. I know th...

<t>my daughter has also shown some "speech " and eating difficulties at 15 months but we relate it to poor muscle tone and the fact that her brain is working so hard to repair the damage from the bpi that the speech and muscle tone will improve as time goes by. She is my 5th also and I know that the...

Hi My name is Terri my husband is Bob. We live in northwest Indiana with our 5 children Bobby 13,Shelby 10, Becca jo 6, Sara 4 and Jamie 15 months --she was born weighing in at 10lbs 13.5 oz with lobpi and right broken clavical! She is surgery free and recovering very well.

we were advised the same thing about toys and also anything that encourages her to pull with her affectd arm ie.. theraputty and puzzles with pegs. Congrats on your sons graaduation and best of luck to all!