United Brachial Plexus Network

TBPI’s your help is needed!

TBPI’s your help is needed!

Up to $100 compensation for your TBPI experience and wisdom.

* UBPN is supporting this research because TBPI patient empowerment, health, and wellbeing is its goal & purpose.

BRIEF:

• 32 TBPI volunteers needed (or possibly more).
• $50 compensation for an estimated 50-60 minutes for participation in each 1 of the 2 studies. Volunteering for both studies doubles the compensation to $100.  
• Your TBPI experience and feedback are needed can help improve how newly injured TBPIs are medically treated. Participate in either 1 or both of 2 of these TBPI research studies funded by National Institutes of Health (NIH), conducted by the BPI Team at the Washington University School of Medicine in St. Louis. Both studies aim to improve the TBPI patient’s quality of care and are specifically TBPI-oriented from previous TBPI reported experiences.

You may participate in both studies if the below requirements are met:

• 25 TBPI volunteers: who have had surgery for their TBPI at some point. No time frame necessary.
• 32 TBPI volunteers: (conducted in 2 phases) 16 partial BPI & 16 complete BPI (complete = all 5 nerves injured at the time of injury / partial is not all 5 nerves injured)

Aim 3 - BPI Outcomes Assessment - UBPN recruitment details (R01 NIH Grant)

BRIEF: “Find and fix any “blind spots” within current medical assessments for TBPI medical treatments.”

• 25 TBPI volunteers: who have had BPI surgery - date of injury not important for study.
• Volunteers to complete: (20-25 min estimated to complete)
• 2 Demographic Questionnaires: (brief)
• 3 BPI related questionnaires: DASH, SF-36, & Postoperative Impact of BPI
• 1 Interview via Zoom: (20-30 min estimated to complete) 
• Time requirements: under 1 hour total for $50 compensation via check 
• STUDY BRIEF & CONTACT INFO: click here

TBPI JOURNEY GUIDE Participation - UBPN recruitment details (R03 NIH Grant)

BRIEF: “A BPI Guide that’s like a coach to help the newly injured navigate recovery as best as possible.” 

• 32 TBPI volunteers: (study conducted in 2 phases) date of injury not important for study.
  • Phase 1: 16 TBPI volunteers (8 partial BPI & 8 complete BPI/pan-plexus).
  • Phase 2: 16 TBPI volunteers (8 partial BPI & 8 complete BPI/pan-plexus).
• 16 partial BPI & 16 complete BPI(complete = all 5 nerves injured at time of injury/ partial is not all 5)
• Demographic Questionnaire (brief in length)
• TBPI Journey Guide: volunteer to read existing guide.
• Feedback survey: after the guide has been read.
• 1  interview via Zoom: (20-30 min estimated to complete, after Feedback survey is completed) 
• Time requirements: under 1 hour total for $50 compensation with Amazon.com gift card
• Anonymous: no identities disclosed with research results.
• STUDY BRIEF & CONTACT INFO: click here

"As a TBPI of almost 19 years, the last 14 of those I’ve remained involved with UBPN, part of helping & fighting for TBPIs wellbeing and health. I firmly believe this research work will profoundly improve the overall medical treatment of all future TBPIs. For once, the “whole-individual” (not just parts of a damaged body) is being considered and addressed during their personally unique experience of TBPI. From devastation this injured can wreak, a path has been charted out to encourage the newly injured’s engagement and empowerment. Help us make sure this guide is worthy for all TBPIs!" - Christopher Janney, President, UBPN Board of Directors

PS: For research publications by Dr. Christopher Dy, these two studies' lead researcher, click here: PUB-MED listing of all Dr Dy research (119 publications) or including “brachial plexus” (27 publications) only.

Christopher J. Dy, MD MPH FACS | Assistant Professor
Division of Hand and Microsurgery | Department of Orthopaedic Surgery
Division of Public Health Sciences | Department of Surgery
Washington University School of Medicine
twitter: @ChrisDyMD | nerveresearch.wustl.edu
NEW Podcast: The Upper Hand – Chuck and Chris Talk Hand Surgery