United Brachial Plexus Network

Uncategorised

Details
Hits: 247

Our 1st UBPN Retreat is going to be a cruise out of Galveston! Retreats are going to be during the off-years when UBPN will not be having camp. The idea of the retreat is to keep the community connected since camp is only every 2 years. And, it allows us to be able to go to places that we can't go for camp. The retreats will be less formal than camp - no sessions, no doctors/professionals, just the community being together and having fun!

Details
Hits: 1651

TBPI’s your help is needed!

Up to $100 compensation for your TBPI experience and wisdom.

* UBPN is supporting this research because TBPI patient empowerment, health, and wellbeing is its goal & purpose.

BRIEF:

  • 32 TBPI volunteers needed (or possibly more).
  • $50 compensation for an estimated 50-60 minutes for participation in each 1 of the 2 studies. Volunteering for both studies doubles the compensation to $100.  
  • Your TBPI experience and feedback are needed can help improve how newly injured TBPIs are medically treated. Participate in either 1 or both of 2 of these TBPI research studies funded by National Institutes of Health (NIH), conducted by the BPI Team at the Washington University School of Medicine in St. Louis. Both studies aim to improve the TBPI patient’s quality of care and are specifically TBPI-oriented from previous TBPI reported experiences.

You may participate in both studies if the below requirements are met:

  • 25 TBPI volunteers: who have had surgery for their TBPI at some point. No time frame necessary.
  • 32 TBPI volunteers: (conducted in 2 phases) 16 partial BPI & 16 complete BPI (complete = all 5 nerves injured at the time of injury / partial is not all 5 nerves injured)

Aim 3 - BPI Outcomes Assessment - UBPN recruitment details (R01 NIH Grant)

BRIEF: “Find and fix any “blind spots” within current medical assessments for TBPI medical treatments.”

  • 25 TBPI volunteers: who have had BPI surgery - date of injury not important for study.
  • Volunteers to complete: (20-25 min estimated to complete)
    • 2 Demographic Questionnaires: (brief)
    • 3 BPI related questionnaires: DASH, SF-36, & Postoperative Impact of BPI
  • 1 Interview via Zoom: (20-30 min estimated to complete) 
  • Time requirements: under 1 hour total for $50 compensation via check 
  • STUDY BRIEF & CONTACT INFO: click here

TBPI JOURNEY GUIDE Participation - UBPN recruitment details (R03 NIH Grant)

BRIEF: “A BPI Guide that’s like a coach to help the newly injured navigate recovery as best as possible.” 

  • 32 TBPI volunteers: (study conducted in 2 phases) date of injury not important for study.
    • Phase 1: 16 TBPI volunteers (8 partial BPI & 8 complete BPI/pan-plexus).
    • Phase 2: 16 TBPI volunteers (8 partial BPI & 8 complete BPI/pan-plexus).
    • 16 partial BPI & 16 complete BPI(complete = all 5 nerves injured at time of injury/ partial is not all 5)
  • Demographic Questionnaire (brief in length)
  • TBPI Journey Guide: volunteer to read existing guide.
  • Feedback survey: after the guide has been read.
  • 1  interview via Zoom: (20-30 min estimated to complete, after Feedback survey is completed) 
  • Time requirements: under 1 hour total for $50 compensation with Amazon.com gift card
  • Anonymous: no identities disclosed with research results.
  • STUDY BRIEF & CONTACT INFO: click here

"As a TBPI of almost 19 years, the last 14 of those I’ve remained involved with UBPN, part of helping & fighting for TBPIs wellbeing and health. I firmly believe this research work will profoundly improve the overall medical treatment of all future TBPIs. For once, the “whole-individual” (not just parts of a damaged body) is being considered and addressed during their personally unique experience of TBPI. From devastation this injured can wreak, a path has been charted out to encourage the newly injured’s engagement and empowerment. Help us make sure this guide is worthy for all TBPIs!" - Christopher Janney, President, UBPN Board of Directors

PS: For research publications by Dr. Christopher Dy, these two studies' lead researcher, click here: PUB-MED listing of all Dr Dy research (119 publications) or including “brachial plexus” (27 publications) only.

Christopher J. Dy, MD MPH FACS | Assistant Professor
Division of Hand and Microsurgery | Department of Orthopaedic Surgery
Division of Public Health Sciences | Department of Surgery
Washington University School of Medicine
twitter: @ChrisDyMD | nerveresearch.wustl.edu
NEW Podcast: The Upper Hand – Chuck and Chris Talk Hand Surgery

 

 

Details
Hits: 63035

Click on the picture to go to the website to learn more about Myself Belts

to shop or click here

 

 

 

Details
Hits: 880
UBPN Camp 2026!!!
Location: YMCA of the Ozarks, Potosi, Missouri
Dates: July 23 - 27, 2026
UBPN CAMP 2026 is a family camp for all of those affected by brachial plexus injuries (adults and children). Speaker sessions include discussions with brachial plexus specialists and therapists, round table discussions for the injured, parents, and siblings, group and individual activities including rock wall climbing, swimming, water activities, archery, zip lining, and much more!

EVERYONE UNDER 18 MUST BE ACCOMPANIED BY AN ADULT!!! This is not a camp that you send your child to for the weekend without you!!
 
The cost for camp will be determined on the type of room that you choose, and then the meal plan for each person in your family. Ages 4 and under will be $30.

There are a few options for lodging.
LAKEVIEW ROOMS ($711 up to 4 people): Hotel style rooms that can accommodate up to 4 people. Each room has 2 queen beds and a roll-a-way bed. Bathroom with sink and vanity. Table and chairs. Walkout balcony with seating and a lake view.
LAKEVIEW LOFT ROOMS ($791 up to 5 people): 
These rooms can accommodate up to 5 people.
Upper Level has a couch and 2 roll-a-way beds, sink & vanity, table & chairs, small refrigerator
Lower Level has 2 queen beds, bathroom w/ exterior sink & vanity, balcony with lake view.
LAKE VIEW CABINS ($951 up to 6 people):
(SIDE BY SIDE DUPLEX UNITS (ACCOMMODATES UP TO 6 PEOPLE ON EACH SIDE)
Each side has bedroom with full size bed, set of bunk beds and 2 roll-a-way beds, bathroom, living area with couch, table & chairs, stone fireplace, small refrigerator & microwave, screened-in wrap around porch.
FOREST VIEW CABINS ($911 up to 6 people):
(SIDE BY SIDE DUPLEX UNITS (ACCOMMODATES UP TO 6 PEOPLE ON EACH SIDE)
Each side has bedroom with full size bed, set of bunk beds and 2 roll-a-way beds, bathroom, living area with couch, table & chairs, stone fireplace, small refrigerator & microwave, screened-in porch with rocking chairs.
MEAL PLANS (REQUIRED FOR EACH PERSON)
Ages 13 & Up: $216 Per Person
Ages 5 - 12: $128 Per Person
Ages 0 - 4: $30 Per Person

THERE WILL BE A $75 NON-REFUNDABLE REGISTRATION FEE APPLIED TO EACH ROOM!!! If your family size requires more than one room, or if you choose more than one room you will have to pay the non-refundable $75 per room registration fee on each room.
CANCELLATION POLICY:
If you register, and then cancel BEFORE November 1, 2025, you can get what you have paid minus the $75 non-refundable registration fee.

If you cancel BEFORE January 1, 2026, you can get 50% of what you have paid for camp, not including the $75 non-refundable registration fee.

If you cancel AFTER March 1, 2026, you will forfeit all monies paid. You can transfer your spot to another family.

Any questions, contact Kimberly at kimberly@ubpn.org
You are here: Home Uncategorised

Follow us

Facebook

Facebook

UBPN

Twitter fox

Twitter

UBPN

UBPN

Youtube

UBPN

Instagram

Instagram

UBPN

snapchat

Snapchat-#officialUBPN

UBPN

Pintrest-officialubpn

UBPN

Popular

Contact us

We look forward to your comments and suggestions!

  • Address: 32 William Road Reading, MA 01867
  • Phone: 781-315-6161
  • Website: ubpn.org
  • Email: info@ubpn.org
Copyright © 2024 United Brachial Plexus Network. All Rights Reserved. Joomla! is Free Software released under the GNU General Public License.