Really cool site
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Really cool site
Years ago, someone started a post and I think Ohio and Michigan had a large number of OBPI. I don't know the stats on TBPI.
Interesting...
If you look at the statistics for Oregon in the last Outreach they were the highest per 1000 births.
Interesting...
If you look at the statistics for Oregon in the last Outreach they were the highest per 1000 births.
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Really cool site
this is really neat and helps alot
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admin
- Site Admin
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- Joined: Mon Nov 16, 2009 9:59 pm
Re: Really cool site
This thread was accidentally deleted.
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Really cool site
bump for the newbies
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admin
- Site Admin
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- Joined: Mon Nov 16, 2009 9:59 pm
Re: Really cool site
Sign up if you havent and check it out
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admin
- Site Admin
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- Joined: Mon Nov 16, 2009 9:59 pm
Re: Really cool site
I also think that the appearance of a concentration of BPI events in the Northeast is very interesting as well. I wonder how many of these families relocated to the Northeast because of its greater availability of services? I think that many of us would be interested to learn where in the BPI is most likely to occur. So I would like to make the suggestion that people when contributing to the site identify not their current residence, but where the injury occured. For example, I currently live in a very rural area, but the injury occured in a very urban area...
Otherwise forgive my suggestion if I offend anyone, I am a statistician. If we post from our current residence, then this site is valueable for its social and support purposes, but if we post the location of the injury this sites serves prehaps a greater epidemiological purpose in identifying the source, hence possibly reducing the incidence, of BPI injuries.
Math BPI Mom
Otherwise forgive my suggestion if I offend anyone, I am a statistician. If we post from our current residence, then this site is valueable for its social and support purposes, but if we post the location of the injury this sites serves prehaps a greater epidemiological purpose in identifying the source, hence possibly reducing the incidence, of BPI injuries.
Math BPI Mom
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Really cool site
Of course, you could have a second map for that purpose
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: Really cool site
I think a second map for that purpoce would be neat. I know I posted where I currently live which is about 3 hours from where my injury occured.
Amy 18 ROBPI from MN
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
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brandonsmom
- Posts: 1401
- Joined: Mon Nov 22, 2004 4:43 pm
Re: Really cool site
You know I was thinking about the same thing. WE lived in California, the injury occured in California but now we live in Illinois. It would be cool to do a map that shows where the injuries are occuring. I am too computer illiterate to try something like this, but think it would be great to see where these injuries are happening !!!
Gayle mom of Brandon 7 ROBPI ILLINOIS
Gayle mom of Brandon 7 ROBPI ILLINOIS
