United Brachial Plexus Network, Inc.

Dawn - mother to Danielle 4yr old ROBPI

I am Pauline, mum of Ryan (9) , Eleanor & Lauren (8 year old twins) and Josh (5) who has RBPI, and diagnosed this year with Duchenne Muscular Dystrophy.
We live with my partner Trev here in England, UK.

hey everyone, Amber here from the dunnfamily. Sean is my husband and we have two little rascals- Tyler 2 (ROBPI) and Maddie 9 months. We live in the northern panhandle of florida or hurricane alley we call it of lately. This site has been a blessing since I discovered it 6 months after Tyler's birth. I come here every week to listen to ya'll-listening to other people going through the same thing really keeps me grounded when I really feel like freaking out over Tyler:)

Hi, my name is Meg, my husband is Rusty and we are parents of Cody who will be nine months old on November 4th, who has Brachial Plexus injury to the right arm, are heading to Texas Childrens Hospital on November 3rd, for the Mod Quad surgery, we live in Fleischmanns, New York, near Woodstock.

Hello, I'm Sandy, wife of Brad and we have 3 great kids, Delaney (7yrs) Austin(6yrs) Brenley(4yrs) and she has a LOBPI. Brenley has had the primary, secondary and caps surgeries. We live in Oklahoma. Please know each and everyone of you and your families will forever be in my prayers. God Bless

Hello, My name is Becky. My husband, Jeremy and I live in Maine and have a 5.5 y.o. son, Matthew and a 3 month old daughter Kiersten. Kiersten was 11 lbs 2 oz at birth and she has RBI. We have been to Boston to see a neurologist and we are doing therapy and she has to wear a split at night to keep her wrist straight.

Bump This up, Please

Hello All, I am age 66 and have LOBPI and only learned a name for this 2 yrs. ago and found UBPN Message Boards on;y in April 2003.The Medical Resource link helped me with the articles on Pain Issues we adults have. I learned alot of helpful things I can do to help. AND not to mention the help of sharing & support I get on the Message Boards!There really is no stuupid question. You will fingd that most adults on the adult message boards have a good sense of humor AND I consider humor as the best survival skill I have next to curiosity to learn & read all I can.
Thanks everyone.
Carolyn J

Hello, I am Rachel, 33 years of age with LOBPI. I had surgery with Dr. Nath a year ago. I love this site.

Hi, I'm Stephanie, mom to Nathan, 2 yrs 8 mo (ROBPI) and Eric (9 wks). So, we are VERY busy at our house right now, but I try to keep up to always be reviewing best therapeutic and medical practice and make sure I'm at least sort of on the cutting edge to help my son as best possible! As of yet he's had no surgical intervention, but may have secondary surgery to help his shoulder joint as some point. We live outside of Philadelphia, PA.