Outreach sightings?
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Outreach sightings?
We have sightings in Wisconsin x 2.
Brenda
Brenda
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Karrie in MD.
- Posts: 126
- Joined: Wed Nov 13, 2002 9:14 pm
Re: Outreach sightings?
Got mine Sat. in Maryland....YEAH!!!! Great articles! Thanks for all the hard work and dedication you put into it.
Karrie
Karrie
Re: Outreach sightings?
Not in Garden City Ks yet : (
Re: Outreach sightings?
Hi!
Got it in Lisbon, Portugal, on the 11th.
LOL
Got it in Lisbon, Portugal, on the 11th.
LOL-
rachelcasa
- Posts: 729
- Joined: Mon Apr 21, 2003 11:45 pm
Re: Outreach sightings?
Thank you so much to all who helped in the outreach magazine in making it such a big success!! I got mine in MONTANA!! THANKS
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
New Address Too!
Oh My - forgot to send my new address also. . . I've got a forwarding order - hopefully I'll get it. . . if not could you please send me another one - I'll email you my new address. . . . .
Re: New Address Too!
Lizzy,
Send me your new address to update and I'll send you out another one.
Anita,
Let me know if it is not forwarded to you and I'll mail you another.
Nancy
Send me your new address to update and I'll send you out another one.
Anita,
Let me know if it is not forwarded to you and I'll mail you another.
Nancy
Re: New Address Too!
Thanks Nancy...email with address on its way!
Lizzy B
Lizzy B
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tylergsmom
- Posts: 282
- Joined: Thu Jan 29, 2004 6:56 pm
- Injury Description, Date, extent, surgical intervention etc: Hi! I am Laura, the mom of Tyler, who has a ROBPI. I've been a member of this site since 1998 and owe a great deal to the wonderful people in the UBPN community who have helped us along the way get what we needed to get done for Tyler. Tyler is now 14 years old and in the 9th grade. He's a super bright kid and loves his video games. Tyler had the mod quad surgery with Dr. Shenaq shortly before he passed. That was his first and only surgery. Now that he is older he is requesting additional surgery. He'd like to be able to supinate. Our goal is for Summer 2013.
- Location: Gulf Breeze, FL
Re: Outreach sightings?
No Outreach in Utah---My mom got her's in Alabama though. ????
Laura LeNoir, Mom of Tyler, Age 14, ROBPI
