acromiopasty
Re: acromiopasty
Someone correct me if I'm wrong please, but I thought the acromio was done in the UK, however it was only done on a handful of kids.
I haven't heard of any other clinic here in the US performing the procedure. I just had someone ask me the other day if there was anyone else besides Nath doing the procedure and I wasn't aware of any. If any body knows of any other clinic performing this operation could you please post so I can pass the info along. I have already passed along the clinics who are performing the capsule release. She wants to get as many opinions as possible since the acromio is no longer done at TCH.
Thanks.
Cindy
I haven't heard of any other clinic here in the US performing the procedure. I just had someone ask me the other day if there was anyone else besides Nath doing the procedure and I wasn't aware of any. If any body knows of any other clinic performing this operation could you please post so I can pass the info along. I have already passed along the clinics who are performing the capsule release. She wants to get as many opinions as possible since the acromio is no longer done at TCH.
Thanks.
Cindy
-
admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: acromiopasty
The acromio has not been done in the uk as a surgery on its own as far as I know. It is sometimes done if the acromion or coracoid is seen to be overgrown during shoulder surgery. The overgrowth is rarely seen.
-
Karen Hillyer
- Posts: 562
- Joined: Fri Sep 06, 2002 1:36 pm
Re: acromiopasty
Professor Birch and Mr Bainbridge (another consultant here in the UK) have been performing corocoidectomy's for about 7-8 years.
The surgery is usually in conjunction with a subscapularis release and in MrBainbridges clinic sometimes with Botox injections.
The surgery is not too invasive and in those children who have it with botox - they are usually discharged from hospital the same day as the procedure is undertaken.
We have not seen large numbers of children with overgrown corocoids and interestingly enough it seems more prevalent in children who have NOT had primary ( nerve graft surgery)
Before surgery, a child is always x rayed and the over grown corocoid process is identified through x ray prior to surgery.
I hope this helps a little
karen
The surgery is usually in conjunction with a subscapularis release and in MrBainbridges clinic sometimes with Botox injections.
The surgery is not too invasive and in those children who have it with botox - they are usually discharged from hospital the same day as the procedure is undertaken.
We have not seen large numbers of children with overgrown corocoids and interestingly enough it seems more prevalent in children who have NOT had primary ( nerve graft surgery)
Before surgery, a child is always x rayed and the over grown corocoid process is identified through x ray prior to surgery.
I hope this helps a little
karen
Re: acromiopasty
Thanks for explaining Karen. That is interesting about the kids who have not had primary.
Cindy
Cindy
-
admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: acromiopasty
My understanding is that the overgrown coracoid process in the UK is actually more of a rarity. As far as I know they do not do the acromion surgery. Also, no other institutions in the U.S. do this procedure either, and TCH stopped performing the procedure back in March/April and have not rescheduled those that were cancelled.
Does anyone in the UK know how many the doctors have even performed over there? I thought I had heard it was just a very small amount in comparison.
Does anyone in the UK know how many the doctors have even performed over there? I thought I had heard it was just a very small amount in comparison.
-
admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: acromiopasty
This is just a goofy comment, but, given all the highly technical jargon we all get into, does anyone else feel like you need an M.D. just to be a parent of BPI child??? I feel like I know more about nerves and tendons than I ever wanted to - not to mention surgical procedures!
-
Karen Hillyer
- Posts: 562
- Joined: Fri Sep 06, 2002 1:36 pm
Re: acromiopasty
Guest - in the Uk Group we have set up a surgical database on which aprents have listed the surgical procedures their child has undergone and the age they underwent surgery an also the surgeon who performed the procedure.
On the database of parents who have completed the questionnaire we have 6 children who have had a corocoidectomy.
4 children had the corocoidectomy in conjunction with a subscapularis release, one had it in conjunction with a Botox injection and one had the procedure performed on it's own.
Three different surgeons were named as performing the procedure on the children.
There are probably more children who have undergone the procedure, however these are the only ones whose parents have comprised our surgical database.
I am sure that the amount of children is small in comparison to those in the USA - of course our health care system is geared differently to that of the USA and also, our population is smaller too.
Karen
On the database of parents who have completed the questionnaire we have 6 children who have had a corocoidectomy.
4 children had the corocoidectomy in conjunction with a subscapularis release, one had it in conjunction with a Botox injection and one had the procedure performed on it's own.
Three different surgeons were named as performing the procedure on the children.
There are probably more children who have undergone the procedure, however these are the only ones whose parents have comprised our surgical database.
I am sure that the amount of children is small in comparison to those in the USA - of course our health care system is geared differently to that of the USA and also, our population is smaller too.
Karen
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: acromiopasty
Null
I think I need an MD just to be OBPI... LOL... I have learned more about nervers and SD birth in the last 4 years... and in my case more about preemie births and I was never interested in becoming a nurse or doctor... LOL... you are so right! But are so lucky that this information is here for you. My poor mother had no support or information to help her along the way I don't know how she did it.
Kath
I think I need an MD just to be OBPI... LOL... I have learned more about nervers and SD birth in the last 4 years... and in my case more about preemie births and I was never interested in becoming a nurse or doctor... LOL... you are so right! But are so lucky that this information is here for you. My poor mother had no support or information to help her along the way I don't know how she did it.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: acromiopasty
Isn't that true, Kath!
Just on a side note, my daughter had the acromioplasty in December and we are very pleased with the results so far.
Emma's internal rotation is sooooo much better and even though this surgery didn't really seem to have anything to do with her triceps--this is the first sign we've seen of them in her 8 years of being! I'm very glad she was able to have this procedure and I can't wait to see the continuing results.
Peggy
Just on a side note, my daughter had the acromioplasty in December and we are very pleased with the results so far.
Emma's internal rotation is sooooo much better and even though this surgery didn't really seem to have anything to do with her triceps--this is the first sign we've seen of them in her 8 years of being! I'm very glad she was able to have this procedure and I can't wait to see the continuing results.
Peggy
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: acromiopasty
My "2cents"....
Not only am I "seniorOBPI" at 66,I am also a MOM of a 34 yr old son that was born with multiple disabilities and my experience is that without knowledge/information parents don't know what questions to ask AND if parents DON'T ask, our children don't get what they need....
FYI,I never learned how to advocate for myself until 2001 at age 63 and learned that this I was born with even had a name & I now rejoice for everyone here who can get the information they need.THERE ARE NO STUPID QUESTIONS!!Ask away....
Carolyn J
Not only am I "seniorOBPI" at 66,I am also a MOM of a 34 yr old son that was born with multiple disabilities and my experience is that without knowledge/information parents don't know what questions to ask AND if parents DON'T ask, our children don't get what they need....
FYI,I never learned how to advocate for myself until 2001 at age 63 and learned that this I was born with even had a name & I now rejoice for everyone here who can get the information they need.THERE ARE NO STUPID QUESTIONS!!Ask away....
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
