United Brachial Plexus Network, Inc.

Hi Erin,
WE BPI-ers ARE T-o-u-g-h!! We Fight thru EVERYTHING like he--! That's what gets us thru the "Yuk of Life" [I call it that, it helps!] Stella is going to be amazing and keep on surprising you, sooo get used to it!!

TAKE CARE OF YOURSELF,MOM!!!

HUGS for you & Stella with Continuing Prayers,
Carolyn J
Adult LOBPI,68, WA (State)
ps..please keep us posted...

Stella turned 5 months old yesterday, the primary surgery on the 26th was her first time in the OR. We met another family whose daughter just had primary surgery yesterday, it was nice talking to them. Otherwise things are just holding steady, waiting for Stella to finish healing up! I'll keep you all updated, thanks again for all of your support! I mentioned UBPN to Dr.Park's PA and she asked yesterday what the website was so she could give it out to patients asking about support groups. I am so glad these boards exist!
Erin

Erin

I hope things are moving along and sweet little Stella is healing.
I have been praying for her daily or just when ever I think of your family.
It must be so tough she is so tiny.

It's amazing how tough us little bpi kids are.
My mother use to say I had a will of iron...
My husband and children will tell you the same thing.
She will soon be up and well and meet all her many milestones.
Looking forward to hearing how well she is doing

Kath (adult/robpi)

Erin,

I was out of town for the weekend. Now I'm catching up with the boards. I will add you and Stella to my prayers. You have my best wishes for a full recovery for Stella.

Joanie

How is little Stella? Continuing to pray for a speedy recovery and for patience for the parents....at this point I would need patience. GAYLE

Prayers, prayers, and more prayers. Your daughter and your family will be in all my prayers.

Laura
Mother of Alyssa

After 18 days in the hospital, we are home tonight. Stella had a 3rd surgery to "investigate" and close up her incision yesterday, and after seeing her useual therapist today, we went home. I swear, she is such a strong little girl, I know I wouldn't have tolerated the stuff she went through! I am so proud and amazed by her, she went through so much, so many painful experiences daily. It was so hard, but I stayed positive because she did. She always tried to give me a smile, I don't know how someone so little made it through all this, it makes me the most mad because she never would have had to experience all this pain if it hadn't been for the delivering doctor. Some of our roomates pointed this out. They said that while their babies were genetically (or from God, depending on who you talked to) given their medical problems, Stella's was inflicted on her by the doctor. One mom said she felt so sorry for me to have known that my child was perfect, and then had that taken away. Ugh, it was a long 18 days. I guess we just have to move on to recovering! Anyways, I look forward to catching up on everything here. Thank you all for the encouragment, thoughts and prayers, I am so lucky to be a part of this board!
Erin

Erin, I am so happy to hear Stella is home now! I hope she gains an excellent recovery from this surgery since she went through so much.

Have a great time with that baby girl of yours!
Hugs,
Amy 19 ROBPI from MN