Hi, my name is Paula

[DeShawn]

Hello everyone. My name is DeShawn and I am the mother of Rain (left 0bpi). Rain has had 3 surgeries so far and is not scheduled for any more at present. Rain is a very happy 2 year old full of love and life. She is truly a joy to have around. We also have a 4 year old daughter named Ocean. Needless to say there is never a quiet moment in my house. Rain loves Barney, and the Wiggles, and running away with Mommy's things (her favorite game). As you see her sense of humor is a little different than mine (smile). Take care,

DeShawn

[njbirk]

Hi,
I'm Nancy, LOBPI, 48 years old.
My injury is a rupture of c5, c6, c7, c8 and t1. Because t1 was affected, I also have Horner's syndrome.

I had surgery as a child, 2 of them, both tendon and muscle transfers and releases. I recently also had the Mod Quad (about a year ago) and it has brought me lots of new ROM.

I am a professor at Kent State University. Have been married to Tim for 29 years, have a son who is 25 (born C-section), and 2 grandchildren.

It pains me greatly that this injury continues to happen at basically the same rate of injury as it did when I was born and yet medicine has progressed so much since then. It is for this reason that I spend as much of my spare time as possible working with UBPN, where I am on the board of directors and am secretary.

Nancy

[Patty1]

Hi everyone,
My name is Patty and Cole Michael was born with a LOBPI. He's 4 1/2 and had a muscle/tendon transfer/release and an Osteotomy (on his upper arm) last March. He gained external rotation, but lost some internal. He's also a tough little boy, with so much drive and personality like Kathleen said. He also has a 10 year old brother, and two step sisters, 13 and 16. I don't post much anymore, but do try to keep up reading. I have learned so much here. Thank you to everyone for your wonderful support.

Best wishes to everyone....

Patty

[admin]

Hi my name is Jennifer, I have not posted in a long time but usually post as Jennifer in MD. We have a 3.5 yo son, Tyler, with robpi. He was 8lbs 13oz at 38wks. He had the mod quad 2yrs ago and is doing great. In fact his occupational therapist doesn't feel she needs to see him every week anymore. We also have a 5.5yo son. Both are the sunshine in my life and thier daddy's. Nice to meet you all, it's been a while.

Jennifer

[Jeanne]

Hi, my name is Jeanne and my 6 year old daughter, Alyssa, has a LOBPI. At 7 months, she has primary surgery, at 2 years old, a nerve graft, both at Riley Chidlrens Hospital in Indy, then last June she had the mod quad done at TCH. June 24th this year she will be having the bicep lengthening also at TCH. Thanks to the internet and this board, when we had lost all hope, we found TCH!
We are currently awaiting a decision on SSI for Alyssa. We appealed in February due to the fact that SSA had no info from TCH. They requested info from a Dr. Nathan in Texas. Apparently, since I did not provide them with an address or phone number,just his name & hospital, this is how they do it...they did a search and that was the doctors name that came up and even though my name & phone number was on the same paper with his name, they never did bother to call me to get any additional information.
I got a call the first week on this month, from a lady that heps with the determination of SSI/disability cases. She said they had contacted TCH and hadn't heard back so I needed to call and find out how to get the medical records for them! I called Lisa Davis, who gave me the number for medical records so that this lady could get the records. This lady also told me on the phone that she wasn't going to leave our case open forever!!
I also have a daughter who turned 2 this past week. Having her party today & Barney is coming! LOL

Jeanne

[Stephanie/OR]

Hi, my name is Stephanie B. I live in Portland, Oregon with my husband Scott and our two children Nicole almost 4 years and Grant(LOBPI)2 years. Grant had the mod/quad and pec release Nov. 7th 2001 @ TCH. I want to welcome any new families to the board and thank all of you "veterans" for all the great advice.

[admin]

Hi my name is Beth and I have a son Patrick 3, with LOBPI. He has had primary surgery @TCH at 9months and mod quad @ TCH at 23 months. We are currently doing TES as well. He is making remarkable improvements everyday. I also have a 5 year old daughter, Olivia and an 18month old, Kendra. I found this board when my son was just 4 days old and have come hear almost every day for support and direction. So thanks to all.
We also went to trial against the delivering ob last August and won after a 5 day trial and jury verdict!!!!
Beth

[admin]

Hi my name is Jean and my son Kyle (bpi) is 12 years old. Kyle has had three surgeries. I have a daughter Shannon, age 10, born c-section, healthy. We live just north of Detroit in Michigan.

[Andrea]

Hi, my name is Andrea and my daughter Alexis is 2 yrs old, we live in Ohio. She has a left OBPI and had primary surgery when she was 7 months old, part of the mod quad when she was 12 months, a pec release when she was 22 months old and she is schedule in September to have the capsulodesis surgery, bicep lengthening and possibly a radial nerve decompression. She goes to therapy three times a week which two days are oriented w/a toddler class which she loves! She is really into singing, painting, and watching her favorite videos, i.e. The Time Life series Silly songs where the kids sing nursery songs, Barney and The Wiggles. She is a great kid and I'm very proud of how far she has came!