my bpi story

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:
Contact hope16_05

my bpi story

Post by hope16_05 »

I just thought that I would share, I made a bpi web site about my experiences. If any one would like to read about my experiences with my bpi and the treatment that I have had, my story is under current journal at www.freewebs.com/bpimn There are also a few pictures (all of me) that show what I can do. There will be a fe w more pictures in about two months.
Amy 18 ROBPI From Minnesota

I am not trying to advertise my site I just thought people might want to read my experiences with a bpi.
Amy 28 years old ROBPI from MN
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CyndiAnn3
Posts: 56
Joined: Mon May 30, 2005 12:00 am

Re: my bpi story

Post by CyndiAnn3 »

Amy -
I checked out your website, and am very impressed! Not only have you shared your story, you have inspired many others to not be afraid to try new things and look for answers. Keep up the good work!
Good Luck @ College and God Bless!
Cyndi
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: my bpi story

Post by Kath »

Amy
Great job! I don't know how you managed to get this done while preparing to leave for college.
Good luck with your first days at school and I will see you at camp.
Kath
Kath robpi/adult

Kathleen Mallozzi
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BIGJAVSMOM
Posts: 503
Joined: Tue Apr 12, 2005 4:11 pm

Re: my bpi story

Post by BIGJAVSMOM »

Amy- nice job with the site.

Good luck with school and your recovery.


MArlyn
Javier 1 ROBPI
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User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:
Contact hope16_05

Re: my bpi story

Post by hope16_05 »

Thanks Cyndi, I am really glad that you see my story that way. I know that is has meaning when people see it this way.

Thanks Kath,
The only way I managed to get this done is not really preparing for college. :) And a lot of free time at work. Cant wait to see you at camp!

Thanks Marlyn,
I am glad you like my site.

Amy 28 years old ROBPI from MN
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Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: my bpi story

Post by Judy-T »

Very nice site Amy. See you at camp...
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: my bpi story

Post by Carolyn J »

Amy, I checked out your site and I am totally impressed,inspired and VERY anxious to give you a huge hug!! Congratulations,&I can't wait until Camp!
Hugs,
Carolyn J
Carolyn J
Adult LOBPI
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Grandma Lou in NH
Posts: 31
Joined: Tue Aug 23, 2005 8:39 am

Re: my bpi story

Post by Grandma Lou in NH »

Wow, a great site and oh so helpful. Thanks, Lou
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jep98056
Posts: 322
Joined: Sun Apr 14, 2002 10:25 pm

Re: my bpi story

Post by jep98056 »

Amy:

I'm very impressed by your site. Excellent work.

John p.
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User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:
Contact hope16_05

Re: my bpi story

Post by hope16_05 »

Judy, Carolyn, Lou, and John,
Thank you all very much. I am glad that it is helpful.

Cant wait to meet some of you at camp! I am so excited!

Hugs,
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
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