Our 9 week old with Erbs..
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Karen Hillyer
- Posts: 562
- Joined: Fri Sep 06, 2002 1:36 pm
Re: Our 9 week old with Erbs..
Debbie
Gavin was 6 months when he had his nerve graft and wasn't casted - keep that in mind - Eoghan's injury may well be different to lots of other children and that will affect his treatment regime- ALL of this is bound to feel alien to you - keep the faith and remember - you aren't going to SEE any real improvement for at least 10-12 months post operatively.
It will seem like forever, but keep being optimistic and doing his physio - it will pay dividends in the end.
I'm at the end of the phone if you want to talk.
Karen
Gavin was 6 months when he had his nerve graft and wasn't casted - keep that in mind - Eoghan's injury may well be different to lots of other children and that will affect his treatment regime- ALL of this is bound to feel alien to you - keep the faith and remember - you aren't going to SEE any real improvement for at least 10-12 months post operatively.
It will seem like forever, but keep being optimistic and doing his physio - it will pay dividends in the end.
I'm at the end of the phone if you want to talk.
Karen
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sharonpmurray
- Posts: 18
- Joined: Wed Mar 24, 2004 1:16 pm
Re: Our 9 week old with Erbs..questions
Hi Keelan is now now 6mths and was reviewed by the surgeon the other day, he feels she needs surgery, first she will have an emg scan , can anyone tell me what to expect if she is casted after the op, what kind of clothes to get her etc...thanks Sharon.
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Our 9 week old with Erbs..
hi sharon, sorry to hear about your daughter. my daughter taylor-jade who is 3 years 5 months was born with erbs to her left arm and recently had botox injections into her arm to try and manipulate the muscles but it has just made it completly worse so now she has to have surgery to correct it, so i would recommend that you should refuse if your consultant suggests it. good luck. emma
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Our 9 week old with Erbs..
Welcome to the fold. There are wonderful medical people in Europe and the UK to deal with the problem and your baby will do just fine. Make sure you contact the various UK organizations and they will certainly take you in and guide you through the process.
The UBPN is a wonderful organization and has made great contributions to families dealing with this injury. We have been modeling some of the European groups after them.
Try not to pay much attention to the claims made by the egocentric Americans. The medical community in Europe and UK is far more advanced than the Americans in dealing with plexus injuries. Drs. such as Birch, Gilbert and Ramondi, Sloof to name a few, have been performing these surgeries for many decades, and have taught most of the Americans. Despite this, you will see outlandish claims on the internet by some of the Yanks (Medical and Families). This is a combination of marketing and religious fanatics, nothing more.
The UBPN is a wonderful organization and has made great contributions to families dealing with this injury. We have been modeling some of the European groups after them.
Try not to pay much attention to the claims made by the egocentric Americans. The medical community in Europe and UK is far more advanced than the Americans in dealing with plexus injuries. Drs. such as Birch, Gilbert and Ramondi, Sloof to name a few, have been performing these surgeries for many decades, and have taught most of the Americans. Despite this, you will see outlandish claims on the internet by some of the Yanks (Medical and Families). This is a combination of marketing and religious fanatics, nothing more.
