Political Outreach for the In Touch Committee
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Political Outreach for the In Touch Committee
I am interested in helping out. Just let me know how.
Brenda
Brenda
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Political Outreach for the In Touch Committee
Forgot to mention, I'm from Wisconsin.
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Political Outreach for the In Touch Committee
Dear John,
good plan. I'm from California. I'll do what I can to help... I'm a working mom with 4 kids, 1 BPI. e-mail me if you want.
good plan. I'm from California. I'll do what I can to help... I'm a working mom with 4 kids, 1 BPI. e-mail me if you want.
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angryparent
- Posts: 95
- Joined: Sun Feb 02, 2003 3:32 pm
Re: Political Outreach for the In Touch Committee
Michelle,
Please e-mail me your personal contact information including phone, address and e-mail.
I am just setting up the State Ambassador infrastructure, and once that is complete, we will be ready to go.
Please feel free to contact me directly if you have any questions.
Thanks for your help on this effort!!
Sincerely,
John Anthony Ferrado
1420 Tim Court
Port Orange, FL 32129
crow63@yahoo.com
Office 386-615-3407
Cell 386-679-9327
Home 386-788-9675
Please e-mail me your personal contact information including phone, address and e-mail.
I am just setting up the State Ambassador infrastructure, and once that is complete, we will be ready to go.
Please feel free to contact me directly if you have any questions.
Thanks for your help on this effort!!
Sincerely,
John Anthony Ferrado
1420 Tim Court
Port Orange, FL 32129
crow63@yahoo.com
Office 386-615-3407
Cell 386-679-9327
Home 386-788-9675
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angryparent
- Posts: 95
- Joined: Sun Feb 02, 2003 3:32 pm
Re: Political Outreach for the In Touch Committee
Dear B.V.
It is great to have you on board, as we could certainly use your experience and expertise in reaching and getting responses from elected officials. Please e-mail me your personal contact information including phone, address and e-mail.
I am just setting up the State Ambassador infrastructure, and once that is complete, we will be ready to go.
Please feel free to contact me directly if you have any questions.
Thanks for your help on this effort!!
Sincerely,
John Anthony Ferrado
1420 Tim Court
Port Orange, FL 32129
crow63@yahoo.com
Office 386-615-3407
Cell 386-679-9327
Home 386-788-9675
It is great to have you on board, as we could certainly use your experience and expertise in reaching and getting responses from elected officials. Please e-mail me your personal contact information including phone, address and e-mail.
I am just setting up the State Ambassador infrastructure, and once that is complete, we will be ready to go.
Please feel free to contact me directly if you have any questions.
Thanks for your help on this effort!!
Sincerely,
John Anthony Ferrado
1420 Tim Court
Port Orange, FL 32129
crow63@yahoo.com
Office 386-615-3407
Cell 386-679-9327
Home 386-788-9675
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angryparent
- Posts: 95
- Joined: Sun Feb 02, 2003 3:32 pm
Re: Political Outreach for the In Touch Committee
Brenda,
Great to have you aboard. This will put Wisconsin on the board. Please e-mail me your personal contact information including phone, address and e-mail.
I am just setting up the State Ambassador infrastructure, and once that is complete, we will be ready to go. Please feel free to contact me directly if you have any questions.
Thanks for your help on this effort!!
Sincerely,
John Anthony Ferrado
1420 Tim Court
Port Orange, FL 32129
crow63@yahoo.com
Office 386-615-3407
Cell 386-679-9327
Home 386-788-9675
Great to have you aboard. This will put Wisconsin on the board. Please e-mail me your personal contact information including phone, address and e-mail.
I am just setting up the State Ambassador infrastructure, and once that is complete, we will be ready to go. Please feel free to contact me directly if you have any questions.
Thanks for your help on this effort!!
Sincerely,
John Anthony Ferrado
1420 Tim Court
Port Orange, FL 32129
crow63@yahoo.com
Office 386-615-3407
Cell 386-679-9327
Home 386-788-9675
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angryparent
- Posts: 95
- Joined: Sun Feb 02, 2003 3:32 pm
Re: Political Outreach for the In Touch Committee
Nancy,
If you could please send your contact info to me at:
crow63@yahoo.com
I am creating the ambassador spreadsheet and I don't have your contact info (address, phone, etc.)
The effort is picking up some good steam. Updates to come soon.
Thanks,
JF
If you could please send your contact info to me at:
crow63@yahoo.com
I am creating the ambassador spreadsheet and I don't have your contact info (address, phone, etc.)
The effort is picking up some good steam. Updates to come soon.
Thanks,
JF
Re: Political Outreach for the In Touch Committee
Hi John,
I just wanted to make sure you got my info okay through the email I sent.
Thanks...
Barbara Horton
I just wanted to make sure you got my info okay through the email I sent.
Thanks...
Barbara Horton
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angryparent
- Posts: 95
- Joined: Sun Feb 02, 2003 3:32 pm
Re: Political Outreach for the In Touch Committee
Barbara,
Yes Ma'am, I did. You are good to go. I am soon to release an update on the effort, as I have had a very good response over direct e-mail.
Again, I cannot thank you enough for your participation. We are going to make a substantial change together, and I think we'll see real results in less than one year.
Update to come soon...
Thanks,
JAF
Yes Ma'am, I did. You are good to go. I am soon to release an update on the effort, as I have had a very good response over direct e-mail.
Again, I cannot thank you enough for your participation. We are going to make a substantial change together, and I think we'll see real results in less than one year.
Update to come soon...
Thanks,
JAF
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angryparent
- Posts: 95
- Joined: Sun Feb 02, 2003 3:32 pm
Re: Political Outreach for the In Touch Committee
Hello all:
A Quick update:
Total of 22 State Ambassadors, 15 States so far.
I plan to devote some serious time this weekend to writing the letters/e-mails. Once I come up with a cohesive and comprehensive topical strategy, then the letters will commence, and we're off to the races.
Not only has the response been solid, but we've managed to stoke the fires of some of you who've been quite successful in getting some type of political contact, and this bodes well for this team effort.
Per some suggestions and successes, we will also be contacting Governors of States as well as the other elected officials.
For now, I would suggest that everyone visit the following sites:
http://www.senate.gov
http://www.house.gov
You can find your particular elected official in each of these sites, simply by:
A) Choosing your state for senate.gov
B) Inputting your Zip+4 for house.gov
This will reveal your particular elected official, complete with contact information.
While I am developing the written communications, please feel free to browse these two sites for a plethora of information. I will also be passing out an excel spreadsheet with ALL elected official names, for your reference. I will also be going through, state by state, and identifying the contact information for each state's Governors. Many of you may already have that. IF you do, please let me know.
Anyway, watch for developments to come.
Godspeed to all,
John Anthony Ferrado
A Quick update:
Total of 22 State Ambassadors, 15 States so far.
I plan to devote some serious time this weekend to writing the letters/e-mails. Once I come up with a cohesive and comprehensive topical strategy, then the letters will commence, and we're off to the races.
Not only has the response been solid, but we've managed to stoke the fires of some of you who've been quite successful in getting some type of political contact, and this bodes well for this team effort.
Per some suggestions and successes, we will also be contacting Governors of States as well as the other elected officials.
For now, I would suggest that everyone visit the following sites:
http://www.senate.gov
http://www.house.gov
You can find your particular elected official in each of these sites, simply by:
A) Choosing your state for senate.gov
B) Inputting your Zip+4 for house.gov
This will reveal your particular elected official, complete with contact information.
While I am developing the written communications, please feel free to browse these two sites for a plethora of information. I will also be passing out an excel spreadsheet with ALL elected official names, for your reference. I will also be going through, state by state, and identifying the contact information for each state's Governors. Many of you may already have that. IF you do, please let me know.
Anyway, watch for developments to come.
Godspeed to all,
John Anthony Ferrado
