14 year old son

[tlowens]

My 14 year old son has a BPI with Erb's Palsy. This is a difficult time in his life, and was wondering if there were other teens out there who would like a pen pal or perhaps adults that could answer questions for him........I would greatly appreciate it. He is a tough kid.......but I have heard him say several times "I feel like the only one like this" Any help would be greatly appreciated.

[admin]

I am 14 too! I have a right BPI and i know how your son is feeling. I have dealt with it my entire life, but lately it has really felt like its holding me back a little more than it used. The feeling of being the only one is one i am VERY familiar with. I am going down to Texas Childrens hospital in april to have a surgery and hopefully get more use of my arm. Tell your son to hang in there and to PLEASE e-mail me if he has any questions or wants to talk! ~Ruthie~

[Karrie in MD.]

Ruthie,
I have a 6 year old son, we will be at TCH April 14th for surgery. When is yours scheduled and what are you having done?
Karrie

[admin]

Karrie,
I am going to TCH on the 5th of april to for the clinic with Dr. Nath. I am not for sure the surgery i am going to have, i will know once i go down there. Based on my video they said that i was acandidate for the mod quad. What kind is your 6 year old having? thanks for the reply! ~Ruthie~

[tlowens]

Julia.........My son is named Josh as well.....and he is in the 8th grade......I will definitely give him your Josh's address......THANKS

[tlowens]

Ruthie,

Thanks so much for your reply........are you comfortable sharing your email address, so Josh could contact you?? Thanks again,
tammy

[admin]

My daughter is 9,and she wants to have surgery also.I'm glad to hear that surgery is an option.I keep hearing about it being done on babies.Good luck.