Arm Growth
Re: Arm Growth
When is this recommended and who recommends this...the PT or our physical medicine dr.? No one has mentioned this to us and I notice a difference.
Re: Arm Growth
Monika:
The use of botox is for contractures, not for bone growth. It will not negatively effect bone growth, however, it does not seem to be indicated in your child's case. I would continue to encourage weight-bearing exercises and look into TES.
The hard thing to accept is that there probably always will be some difference in the arm length.
hope it helps,
claudia
The use of botox is for contractures, not for bone growth. It will not negatively effect bone growth, however, it does not seem to be indicated in your child's case. I would continue to encourage weight-bearing exercises and look into TES.
The hard thing to accept is that there probably always will be some difference in the arm length.
hope it helps,
claudia
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admin
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Re: Arm Growth
In regards to your original question about bone growth, I had two limb/bone legthenings done, one on the upper arm and one on the lower, when i was in the 4th grade. I was the doctors first bone legthening on a BPI. I know that he does these surgeries on children but i am not sure how young. I am seventeen now and looking back I will admit that it was very difficult at times and very time consuming but it was well worth it and i am so grateful that my parents did this for me. We got a lot of length and this is permanent. Now, because your daughter only has a cenimeter difference in her arm it may not be worth it but it is another option.
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admin
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Re: Arm Growth
In regards to your original question about bone growth, I had two limb/bone legthenings done, one on the upper arm and one on the lower, when i was in the 4th grade. I was the doctors first bone legthening on a BPI. I know that he does these surgeries on children but i am not sure how young. I am seventeen now and looking back I will admit that it was very difficult at times and very time consuming but it was well worth it and i am so grateful that my parents did this for me. We got a lot of length and this is permanent. Now, because your daughter only has a cenimeter difference in her arm it may not be worth it but it is another option.
Re: Arm Growth
Thanks again,
Our PT mentioned the Botox to us as a treatment for Jessica, she has a slight contracture, which her PT says she can stretch out, but Jessica can't do by herself. We are still trying to find a 'specialist' here & hope that maybe we can get some answers.
PS. Although Jessica's contracture is only slight, her arm seems to be bent wrong, instead of curved in, (like she was holding something), it curves out to the side. Very hard to describe.
Our PT mentioned the Botox to us as a treatment for Jessica, she has a slight contracture, which her PT says she can stretch out, but Jessica can't do by herself. We are still trying to find a 'specialist' here & hope that maybe we can get some answers.
PS. Although Jessica's contracture is only slight, her arm seems to be bent wrong, instead of curved in, (like she was holding something), it curves out to the side. Very hard to describe.
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marymom
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Re: Arm Growth
monika, one centimeter is really REALLy excellant! did you say ONE CM?
that is awesome!!!!!!!!!!
is that in length or girth?
that is awesome!!!!!!!!!!
is that in length or girth?
Re: Arm Growth
Monika:
Regarding the botox...physiatrists (we used to call them Physical Medicine and Rehab specialists) are the doctors who usually do this. Many pediatric physiatrists have CP kids in their practice. Botox is used extensively in the treatment of CP contractures. If you find one that you like but he/she is not sure of using botox on a bpi, I am sure that your bpi specialist would talk to them about it. I go to tch for Juliana's surgeries; my physiatrist called them before doing botox.
Interestingly, the botox is covered by my insurance.
If you have any other questions about botox, you can email me directly.
claudia
Regarding the botox...physiatrists (we used to call them Physical Medicine and Rehab specialists) are the doctors who usually do this. Many pediatric physiatrists have CP kids in their practice. Botox is used extensively in the treatment of CP contractures. If you find one that you like but he/she is not sure of using botox on a bpi, I am sure that your bpi specialist would talk to them about it. I go to tch for Juliana's surgeries; my physiatrist called them before doing botox.
Interestingly, the botox is covered by my insurance.
If you have any other questions about botox, you can email me directly.
claudia
