Coping with Palsy as a teen
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Coping with Palsy as a teen
Miss Elizabeth,
I can't believe that you are posting on the boards. Your Mother has prepared you to take on the challenges we face as OBPI. You know how your injury happened, what was done to gain motions and how to speak up, when you have to.
Welcome to the message boards. You were such a little one when I met your Mom here at UBPN. She has always been a blessing to these Message Board.
Louise,
You are a great Mom! I was lucky enough to have a Mom who prepared me to cope with the world and that was the biggest blessing the Lord gave me. Miss Elizabeth is blessed to have you as a Mom.
Kath robpi/adult
I can't believe that you are posting on the boards. Your Mother has prepared you to take on the challenges we face as OBPI. You know how your injury happened, what was done to gain motions and how to speak up, when you have to.
Welcome to the message boards. You were such a little one when I met your Mom here at UBPN. She has always been a blessing to these Message Board.
Louise,
You are a great Mom! I was lucky enough to have a Mom who prepared me to cope with the world and that was the biggest blessing the Lord gave me. Miss Elizabeth is blessed to have you as a Mom.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: Coping with Palsy as a teen
kath and elizabeth, the two of you have no idea how lucky you really are. i came from extremely abusive parents. i pretty much raised myself. but i know i am o.k. just like to hear people had good parents. dont forget to tell your parents how valuable they are.
Re: Coping with Palsy as a teen
I am 20 and have Erb's Palsy, it'd be great to talk to someone! PM me if you want to talk 
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Becka
- Posts: 21
- Joined: Tue Mar 01, 2011 8:56 am
- Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.
Re: Coping with Palsy as a teen
Some time this year I'm having surgery in two places on my left arm. My bone and socket. I hope it goes well... 
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emilyalberger
- Posts: 51
- Joined: Tue Mar 29, 2011 5:53 am
- Injury Description, Date, extent, surgical intervention etc: left arm bpi since birth,can only bend my elbow mostly ne feeling n when i get it its not the right sensation
Re: Coping with Palsy as a teen
hello im emily and i got lobpi im 21 yrs old now and how does everyone deal with the pain? ive used tylenol but it doesnt work
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Jennifer P
- Posts: 220
- Joined: Wed Sep 09, 2009 7:12 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
- Location: Pacific Northwest
Re: Coping with Palsy as a teen
I use a foam roller and a tennis ball. I find that most of my pain comes from my muscles being tense. Using the foam roller helps to loosen the muscles up.
The tennis ball is a more intense version of the foam roller, I get most of my pain/tension under my scapula (shoulder blade). I put the tennis ball just under the bottom of my scapula and lay on it. It feels akin to getting a deep tissue massage (aka painful) but afterwards my arm feels so loose and awesome and it lasts for a few days.
The tennis ball is a more intense version of the foam roller, I get most of my pain/tension under my scapula (shoulder blade). I put the tennis ball just under the bottom of my scapula and lay on it. It feels akin to getting a deep tissue massage (aka painful) but afterwards my arm feels so loose and awesome and it lasts for a few days.
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Becka
- Posts: 21
- Joined: Tue Mar 01, 2011 8:56 am
- Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.
Re: Coping with Palsy as a teen
Do any of you guys use a towel on Ur back to help posture? 
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emilyalberger
- Posts: 51
- Joined: Tue Mar 29, 2011 5:53 am
- Injury Description, Date, extent, surgical intervention etc: left arm bpi since birth,can only bend my elbow mostly ne feeling n when i get it its not the right sensation
Re: Coping with Palsy as a teen
a towel? i never would of thought of it....u put it on your lower back right?
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Becka
- Posts: 21
- Joined: Tue Mar 01, 2011 8:56 am
- Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.
Re: Coping with Palsy as a teen
Yeah but i just go a noodle ( the swimming kind) so that may work
