Coping with Palsy as a teen
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Coping with Palsy as a teen
Oreo's & Mountainn dew and Jennifer,
It took 66 years for me to find something to excel in AND FIND UBPN...
Hugs,
Carolyn J
LOBPI/72++
It took 66 years for me to find something to excel in AND FIND UBPN...
Hugs,
Carolyn J
LOBPI/72++
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Jennifer P
- Posts: 220
- Joined: Wed Sep 09, 2009 7:12 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
- Location: Pacific Northwest
Re: Coping with Palsy as a teen
and that's totally alright! 
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Becka
- Posts: 21
- Joined: Tue Mar 01, 2011 8:56 am
- Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.
Re: Coping with Palsy as a teen
Hi, my name is Becka and I'm new. I'm 13 right now and I would enjoy talking to anyone cause, I'm a little lonely. Any way ill be on latter and hope I can get to know any one real soon.
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sophielove13
- Posts: 2
- Joined: Tue Mar 01, 2011 9:41 pm
- Injury Description, Date, extent, surgical intervention etc: I was born with erbs palsy and i am not going to lie its been freaking hard, i am only 14 right but i would like to help anybody also i need help myself
Re: Coping with Palsy as a teen
I know that its hard trust me i have had it since birth i am 14 right now and i feel the same as you like little simple things the world takes advange of is just so hard for me. I can relate to the pain just writing will have my arm hurt like heck. But you know what i think sometimes is that even though we have it hard other people have it worse. That probly didnt help much, but if you ever need someone to talk to i am here <3
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Becka
- Posts: 21
- Joined: Tue Mar 01, 2011 8:56 am
- Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.
Re: Coping with Palsy as a teen
Thanks, I say the hardest part is going through the hard and painful exercises that you have to do. I never did the exercises after age 9 they were just to hard to do when you have BPI 
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Coping with Palsy as a teen
getting through the awkward teenage years is a little more difficult with a bpi, but we adults are here to let you know that we all got through it ...you can do it too. i know that the exercises hurt, but it for your own good to continue doing them. you may not think well of it now, but i only wish i continued to do them... i lost so much function quitting the exercises... people may point and laugh or stare... or even say mean things... but you have to either educate them or ignore them... dont let them get to you. we are stronger becasue of our injuries, im pretty sure we even have a higher tolerance for pain. i hope that i helped a little, im around...
...you can do it too. i know that the exercises hurt, but it for your own good to continue doing them. you may not think well of it now, but i only wish i continued to do them... i lost so much function quitting the exercises... people may point and laugh or stare... or even say mean things... but you have to either educate them or ignore them... dont let them get to you. we are stronger becasue of our injuries, im pretty sure we even have a higher tolerance for pain. i hope that i helped a little, im around... ~Mel/23/LOBPI
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Becka
- Posts: 21
- Joined: Tue Mar 01, 2011 8:56 am
- Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.
Re: Coping with Palsy as a teen
Yep that's what i always do. just ignoring them is the best way for me. and since i didn't continue the exercises my left arm is really shorter than the other. maybe about an inch.
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Coping with Palsy as a teen
mine is shorter too you are not alone!! i think it has something to do with the nerve damage... i know a few other adults with shorter arms too!
you are not alone!! i think it has something to do with the nerve damage... i know a few other adults with shorter arms too!~Mel/23/LOBPI
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Jennifer P
- Posts: 220
- Joined: Wed Sep 09, 2009 7:12 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
- Location: Pacific Northwest
Re: Coping with Palsy as a teen
mine's shorter too. and skinnier, i hate wearing long sleeves.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Coping with Palsy as a teen
Every adult "OBPI-er" that I've met and read posts here , their...OUR... BPI arm is sorter than the "good" one.
Hang in here!! 
Carolyn J
LOBPI/72++
Hang in here!!
Carolyn J
LOBPI/72++
