How is little Phineas?

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

How is little Phineas?

Post by Mica »

Traci,

How is little Phineas doing? How are YOU doing?

Just letting you know we are all thinking of you and praying for your family.

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veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Re: How is little Phineas?

Post by veggiebug »

He is doing really well. He does still seem to fuss when I nurse him with his right side against me, as is he's still sore or something. But he has amazing ROM, and I'm doing gentle ROM exercises with him. The pediatrician said she thinks he'll make a full recovery. We see her again on Tues. So he'll be watched closely and she said just to be cautious of his arm, though he's doing well with it, try to keep it close to him when he's resting or being held.
Thanks for asking.

-Traci
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Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: How is little Phineas?

Post by Mica »

Yay, Phineas!!! That's wonderful news! :)
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: How is little Phineas?

Post by Carolyn J »

Traci,
We are all cheering for our Phineas!! :mrgreen:
HUGS,
Gramma Carolyn J
Carolyn J
Adult LOBPI
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: How is little Phineas?

Post by Kath »

So glad to hear he is doing so well...

How are you doing? I see you getting out and I'm sure the more he moves the better you feel. I've been thinking you and praying he makes a quick recovery. He is a beautiful baby.

Love
Kath & Ralph
Kath robpi/adult

Kathleen Mallozzi
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veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Re: How is little Phineas?

Post by veggiebug »

We went to another pediatrician appt. today, he gained almost a lb in a week.
She set him up with OT this coming Monday, and a neuro appt for Oct. 18th. When she put him on his belly today, he just layed on the injured side, didn't lift himself at all. Thought still getting good movement in the arm overall at least in my thoughts. So I'm glad they seem to be on top of things, and it seems he'll be watched closely for the coming months.

Any thoughts on questions for the OT visit?
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User avatar
veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Re: How is little Phineas?

Post by veggiebug »

Went for OT yesterday. She just watched him move and looked to see what he can do. They had the wrong arm written down, so she was confused a bit. But she said the good news is you can barely tell a difference in his arms. He's doing REALLY well and he's working on his movements all by himself.
Made me feel better that she's very familiar with BPI's. Her son even has one from birth. Left some info with her about UBPN which she was excited about.
We go back next month for Neuro appt. & another OT appt. Seems he'll make a full recovery with no trouble.
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AlannahD
Posts: 234
Joined: Mon May 09, 2005 3:55 pm
Injury Description, Date, extent, surgical intervention etc: 7-year-old granddaughter, LOBPI

Re: How is little Phineas?

Post by AlannahD »

Glad to hear Phineas is doing so well!
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