Seeing things from another side of the injury...
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Seeing things from another side of the injury...
I've been a tad distant from everyone this week, I do appoligize but I needed to find out what we were dealing with if anything. As a lot of you know I had my son Phineas on 8/23, and I thought everything would go as smoothly as it did when I had Jack 4 years ago, but it didn't.
My midwife was fully aware of my concerns about a big baby, and also about BPI's because of my own OBPI. I thought I was in good hands. But after Phineas came out Jon told me his concerns about how hard she pulled on him. Then AFTER he came out we found out he had gotten stuck, NO ONE told us. And very soon after they said the words I feared, "he's not moving his arm right". I was very upset, but I did not jump out of bed and chase them down the hall like I assumed I would. I took every day since then, one day at a time.
The Dr. in the hospital said he wouldn't be suprised if he had a mild BPI. At that point Phineas was moving his arm below the elbow only. He wasn't getting his shoulder up at all. Once he was home he moved his arm a couple times, and yesterday and today he's doing incredible. When we saw his pediatrician today, she said he looked great, she thinks he'll make a full recovery, but we'll still becareful with his movements, and do a little ROM exercises as well.
This has given me quite a new point of view. I thought I had so much more control of my birthplan in the delivery room, but that was not the case. They tell you to make all these decisions and then they take it upon themselves to do what they want without even a hint of letting you know there's a problem. I only pushed for 16 min. so he wasn't stuck long, there had to be another manner in which they could have worked him free.
Another issue is my mom works there in Labor and Delivery, so I couldn't make a fuss. I had to keep silent in my anger and I'll have to remain pretty silent about it all for a long time to come. Her and I have argued about BPI's and everything that surrounds hospital vs. patient and we've never seen eye to eye. All she could do in that moment is turn her head, she couldn't watch, she knew what was going on and even she didn't tell me. I've decided it's no longer an issue we can discuss, it's best for our relationship to let it drop.
I have a lot of emotions yet to deal with. We're pretty sure he'll be fine, and I do believe them, he's doing so well. But on the other hand if I didn't have UBPN I think I'd be a complete wreck or maybe I'd be overly gullable with Dr's. Either way it was another moment, I knew I had somewhere to go for support.
Thank you!
My midwife was fully aware of my concerns about a big baby, and also about BPI's because of my own OBPI. I thought I was in good hands. But after Phineas came out Jon told me his concerns about how hard she pulled on him. Then AFTER he came out we found out he had gotten stuck, NO ONE told us. And very soon after they said the words I feared, "he's not moving his arm right". I was very upset, but I did not jump out of bed and chase them down the hall like I assumed I would. I took every day since then, one day at a time.
The Dr. in the hospital said he wouldn't be suprised if he had a mild BPI. At that point Phineas was moving his arm below the elbow only. He wasn't getting his shoulder up at all. Once he was home he moved his arm a couple times, and yesterday and today he's doing incredible. When we saw his pediatrician today, she said he looked great, she thinks he'll make a full recovery, but we'll still becareful with his movements, and do a little ROM exercises as well.
This has given me quite a new point of view. I thought I had so much more control of my birthplan in the delivery room, but that was not the case. They tell you to make all these decisions and then they take it upon themselves to do what they want without even a hint of letting you know there's a problem. I only pushed for 16 min. so he wasn't stuck long, there had to be another manner in which they could have worked him free.
Another issue is my mom works there in Labor and Delivery, so I couldn't make a fuss. I had to keep silent in my anger and I'll have to remain pretty silent about it all for a long time to come. Her and I have argued about BPI's and everything that surrounds hospital vs. patient and we've never seen eye to eye. All she could do in that moment is turn her head, she couldn't watch, she knew what was going on and even she didn't tell me. I've decided it's no longer an issue we can discuss, it's best for our relationship to let it drop.
I have a lot of emotions yet to deal with. We're pretty sure he'll be fine, and I do believe them, he's doing so well. But on the other hand if I didn't have UBPN I think I'd be a complete wreck or maybe I'd be overly gullable with Dr's. Either way it was another moment, I knew I had somewhere to go for support.
Thank you!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Seeing things from another side of the injury...
ohhhhhhhhhhhhhhh My Lord, Traci!! I have prayed sooo hard for you and Phineas! Please call me at your convienence.
I could never talk to my mother either...and my sibs avoid everything about the subject too.
Thank God for Jon!
HUGS,
Carolyn J
I could never talk to my mother either...and my sibs avoid everything about the subject too.
Thank God for Jon!
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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AlannahD
- Posts: 234
- Joined: Mon May 09, 2005 3:55 pm
- Injury Description, Date, extent, surgical intervention etc: 7-year-old granddaughter, LOBPI
Re: Seeing things from another side of the injury...
Traci - my heart goes out to you - it is hard to imagine your feelings - Prayers for you and your little bundle -
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Seeing things from another side of the injury...
Traci
I don't know what to say! We learned so much here but when we end up on the delivery table so much is still out of our control.
I'm so sorry your Mom can't be open with you and talk about this... I know how much we need our mother's when we give birth. I wish there was something I could say that would help you at this time but words seem to fail me. I'm in tears because I thought for sure Mom's who know all about bpi were safe when they shared their concerns with their doctors.
As far as making a fuss... I don't know if I could be as good as you with the doctors, midwife and hospital....
I'm glad to hear he has so much movement and that he seems to be making progress, you know how to stay on top of this. My heart goes out to you and wish we all lived closer so that we could give you the hugs and support you need now and in the months to come... Love, hugs and prayers for complete recovery.
Kath
I don't know what to say! We learned so much here but when we end up on the delivery table so much is still out of our control.
I'm so sorry your Mom can't be open with you and talk about this... I know how much we need our mother's when we give birth. I wish there was something I could say that would help you at this time but words seem to fail me. I'm in tears because I thought for sure Mom's who know all about bpi were safe when they shared their concerns with their doctors.
As far as making a fuss... I don't know if I could be as good as you with the doctors, midwife and hospital....
I'm glad to hear he has so much movement and that he seems to be making progress, you know how to stay on top of this. My heart goes out to you and wish we all lived closer so that we could give you the hugs and support you need now and in the months to come... Love, hugs and prayers for complete recovery.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Seeing things from another side of the injury...
what else can we do?? we raise awareness, but are not listened to? i'm sorry that it had to happen even though you informed them and shared your concerns. did you say your mom was in the room and didn't say anything? im sorry, but thats not cool! my thoughts are with you and your son for a speedy and full recovery
~Mel/23/LOBPI
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: Seeing things from another side of the injury...
Tracy,
I am so sorry to here about what happened. I am glad to here Phineas is going to make a full recovery! My prayers go out to you and your family! Your are one heck of a woman to hold your thoughts back, because I do not think I would be able to.
I am so sorry to here about what happened. I am glad to here Phineas is going to make a full recovery! My prayers go out to you and your family! Your are one heck of a woman to hold your thoughts back, because I do not think I would be able to.
