Camp ?
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Camp ?
I have heard this might be the last year for UBPN to have a camp and was wondering if this is true? I have a 3 year old with a LOBI and feel it is to expensive to pay for us to go because of his age. Plus we decide to look into other treatments with another doctor and are thinking about another surgery. I am sure we will enjoy it, but not sure he will remember anything, plus this camp is within driving distance from us! I would realy like to take him one year when he can really benfit from it, but affraid that I will never have a chance!
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Camp ?
Hi,
UBPN has not been able to even break even in past camps-going red in this area-, and this camp we are hoping that enough people attend to make the effort worth while. With the change in the costs structure (kids under 17 and under are no cost) this will be the cheapest camp in the last 7 years. It will not be cheaper than this year, especially if you can drive. We can't say if it will be the last one, but if the effort doesn't seem worth the turnout, we may need to direct our efforts towards activities that touch a larger part of our community
Rich
president ubpn
UBPN has not been able to even break even in past camps-going red in this area-, and this camp we are hoping that enough people attend to make the effort worth while. With the change in the costs structure (kids under 17 and under are no cost) this will be the cheapest camp in the last 7 years. It will not be cheaper than this year, especially if you can drive. We can't say if it will be the last one, but if the effort doesn't seem worth the turnout, we may need to direct our efforts towards activities that touch a larger part of our community
Rich
president ubpn
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: Camp ?
Bfaithda,
Hey! Cameron is 2 now and I am sure he won't remember anything either, but we are attending for us (Cary and me). I am looking forward to meeting many other parents, learning from their experiences and sharing ours. We have a wonderful line of inspirational speakers that will share their accomplishments and and journeys. The great thing about Camp UBPN is that it is for the WHOLE family and not just for the kids. There are activities, adult only round table discussions, and brachial plexus specialists that will be there to talk about the latest in brachial plexus injuries and answer your questions. I think parents benefit as much, if not more, than the kids. I believe it is priceless to be able to come together with so many families that are on the same path as us, and also those who have been there already! We are in the early stages and there will be parents there with children younger than ours that we can inspire and many with older children/teens/and adults with brachial plexus injuries that can help us along our way!
When Cary and I connect with families that have been affected by brachial plexus injuries, they become like our family. It is a connection that words can not explain. Attending camp for us is an investment that has lifetime benefits.
Not only are we attending as a family, but I believe in camp so much that I volunteered to help coordinate it. I don't know what the future might hold for camp, but I know I don't want to pass up this opportunity!
There are scholarships available, so please apply if you decide to go.
Hope to see you there!
Anise
Camp Coordinator
Hey! Cameron is 2 now and I am sure he won't remember anything either, but we are attending for us (Cary and me). I am looking forward to meeting many other parents, learning from their experiences and sharing ours. We have a wonderful line of inspirational speakers that will share their accomplishments and and journeys. The great thing about Camp UBPN is that it is for the WHOLE family and not just for the kids. There are activities, adult only round table discussions, and brachial plexus specialists that will be there to talk about the latest in brachial plexus injuries and answer your questions. I think parents benefit as much, if not more, than the kids. I believe it is priceless to be able to come together with so many families that are on the same path as us, and also those who have been there already! We are in the early stages and there will be parents there with children younger than ours that we can inspire and many with older children/teens/and adults with brachial plexus injuries that can help us along our way!
When Cary and I connect with families that have been affected by brachial plexus injuries, they become like our family. It is a connection that words can not explain. Attending camp for us is an investment that has lifetime benefits.
Not only are we attending as a family, but I believe in camp so much that I volunteered to help coordinate it. I don't know what the future might hold for camp, but I know I don't want to pass up this opportunity!
There are scholarships available, so please apply if you decide to go.
Hope to see you there!
Anise
Camp Coordinator
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Camp ?
UBPN CAMP IS A LIFE-CHANGING EXPERIENCE FOR BOTH PARENTS,BPI CHILDREN, SIBLINGS, & GRANDPARENTS WHO ATTEND. I witbessed and experienced this in 2 Camps, 2005(Wahington DC) and Camp 2007 in Auburn WA.
No matter what age, children benefit BECAUSE you parents get sooo much support and 1-on1's & group talks with other parents and Professionals who attend and share everything asked of them....AND so much more from all of the planned activities. There are plenty of volunteers for siblings and all children .
ATTEND if you can...there is scholarship funds, just apply,includes transportation, if believe if needed.
HUGS,
"Gramma" Carolyn J
LOBPI/72
No matter what age, children benefit BECAUSE you parents get sooo much support and 1-on1's & group talks with other parents and Professionals who attend and share everything asked of them....AND so much more from all of the planned activities. There are plenty of volunteers for siblings and all children .
ATTEND if you can...there is scholarship funds, just apply,includes transportation, if believe if needed.
HUGS,
"Gramma" Carolyn J
LOBPI/72
Carolyn J
Adult LOBPI
Adult LOBPI
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mommieinneed
- Posts: 181
- Joined: Thu Jun 14, 2007 6:19 pm
Re: Camp ?
We went to our first camp in 2007...I learned alot from all the parent activities....I even met a really great person that we kept in contact every month until she passed away...She even got me in contact with her attorney that actually took our case even though we couldnt find anyone else to take it...
I went away with alot from camp...Maggie got to see others with her injury and that made her feel better about herself since we thought it was just a fluke that this happened to her...
I hope to see you there Bridgette
I went away with alot from camp...Maggie got to see others with her injury and that made her feel better about herself since we thought it was just a fluke that this happened to her...
I hope to see you there Bridgette
