Camp 2010
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Camp 2010
Are there any TBPI's planning on attending?
I have been to the last 3 camps and I found it great to meet and talk with others who are injured!
Courtney
I have been to the last 3 camps and I found it great to meet and talk with others who are injured!
Courtney
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Susie Kaye
Re: Camp 2010
I wish I could, but the finances just aren't there. I hope you all have a great time!
Susie Kaye
Susie Kaye
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Camp 2010
APPLY FOR Scholarship, Susie Kaye???
it's worth the try/paperwork~
Carolyn J
LOBPI/72
it's worth the try/paperwork~
Carolyn J
LOBPI/72
Carolyn J
Adult LOBPI
Adult LOBPI
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: Camp 2010
There will be a speaker, Dr. Tung, from Washington University St. Louis that will have a discussion regarding adults with BPI. His group is a leader with technological advances with medicine for the injury and pain relief. There is so much they are doing! If you can make it, it would definitely be worth the trip- not to mention the many other activities and talks that are planned throughout the weekend! If you can't afford it, try to apply for a scholarship!
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Camp 2010
At this point, we cant afford it either!
I Hope there are some TBPI that make it out! The number has always been minimal! I would LOVE to see that grow!!!
Courtney
I Hope there are some TBPI that make it out! The number has always been minimal! I would LOVE to see that grow!!!
Courtney
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hilltopfwb
- Posts: 82
- Joined: Fri Dec 11, 2009 11:50 am
- Injury Description, Date, extent, surgical intervention etc: May 24, 2008 an 88 year old lady did not see me and pulled out while I was riding my 06 HD Street Glide. The accident resulted in 9 broken bones and brain hemorrhaging. The accident's most serious results was two avulsions confirmed in my C6 & C7 vertebrae. In Oct of 08 Dr. Li of Wake Forest University performed nerve transfer lasting around 8 hours in surgery. I have limited use now of my left arm. It took until July of 09 before it moved at all, and now is moving limited. I experience burning pain in my left hand, staying busy helps keep the mind off of burning. I visited the Mayo Clinic May, 2010 and consulted with their brachial plexus team. May 1, 2012, I underwent a muscle transfer at Wake Forest University. This surgery was deemed a success and I have more movement in my arm.
- Location: Fuquay Varina NC 27526
- Contact:
Re: Camp 2010
I hate to be ignorant, but when and where is this Camp? I would try to go if it were in my ability to do so.
Information would be greatly appreciated.
thanks
Information would be greatly appreciated.
thanks
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hilltopfwb
- Posts: 82
- Joined: Fri Dec 11, 2009 11:50 am
- Injury Description, Date, extent, surgical intervention etc: May 24, 2008 an 88 year old lady did not see me and pulled out while I was riding my 06 HD Street Glide. The accident resulted in 9 broken bones and brain hemorrhaging. The accident's most serious results was two avulsions confirmed in my C6 & C7 vertebrae. In Oct of 08 Dr. Li of Wake Forest University performed nerve transfer lasting around 8 hours in surgery. I have limited use now of my left arm. It took until July of 09 before it moved at all, and now is moving limited. I experience burning pain in my left hand, staying busy helps keep the mind off of burning. I visited the Mayo Clinic May, 2010 and consulted with their brachial plexus team. May 1, 2012, I underwent a muscle transfer at Wake Forest University. This surgery was deemed a success and I have more movement in my arm.
- Location: Fuquay Varina NC 27526
- Contact:
Re: Camp 2010
Sorry, I was ignorant...I found the application and information on the sight. Thanks all
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Camp 2010
You were NOT ignorant, just didnt see it 
Many TBPI come just for the message boards and do not look elsewhere on the site!
Glad you found it!!
Courtney
Many TBPI come just for the message boards and do not look elsewhere on the site! Glad you found it!!
Courtney
Re: Camp 2010
Well Courtney, I have thought about it. Anybody else tbpi besides you and me?
Re: Camp 2010
I'll be there that Saturday! Unfortunately, I can't stay longer than a day, but I am excited to go!!
