We can register on the Campaign to Cure Paralysis map

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

We can register on the Campaign to Cure Paralysis map

Post by Kath »

We can register on the Campaign to Cure Paralysis map.
This map is part of the Christopher Reeve Foundation. This Program was up over a year ago but brachial plexus injury was not included, therefore, we could not register or be counted. Now we can! I just receive a note this morning and registered so I'm counted. It only took 70 years for someone to count me. LOL...


http://www.campaigntocureparalysis.org/
Kath robpi/adult

Kathleen Mallozzi
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: We can register on the Campaign to Cure Paralysis map

Post by Carolyn J »

Thanks Kath. I registered.
Carolyn J
Carolyn J
Adult LOBPI
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karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: We can register on the Campaign to Cure Paralysis map

Post by karategirl1kyu »

Me too!!
~Mel/23/LOBPI
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Chris88
Posts: 45
Joined: Wed Jul 11, 2007 4:21 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI C5 to C7
No operations to this point.
Location: Savannah, GA

Re: We can register on the Campaign to Cure Paralysis map

Post by Chris88 »

Me three! I'm on the map. :)
"Success is peace of mind, which is a direct result of self satisfaction in knowing you made the effort to do the best of which you are capable."
Coach John Wooden
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