Topamax (Topiramate) for pain?
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- Posts: 110
- Joined: Sat Dec 20, 2008 9:44 pm
- Injury Description, Date, extent, surgical intervention etc: RTBPI - injured during a right cervical rib resection on 12/3/2008 for thoracic outlet syndrome. The doctor completely transected the lateral cord at C5-C6 Erb's pointe and the suprascapular nerve. Had a nerve repair done on 12/12/2008 to reattach the nerves. Did two years of OT. I have some issues with overuse issues with my left shoulder and also have come to find that my joints are hypermobile so I have instability in the joints which causes a lot of problems such as pressure and pain.
- Location: Indiana
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Topamax (Topiramate) for pain?
Hey,
Just curious if anyone has tried Topamax (Topiramate) for pain? I have been on it since about Dec 25th. It is a seizure drug, just like Lyrica and Neurontin. Neurontin didn't work for me, so I was put on Topamax as I had seen some online research about how it worked very differently than Lyrica and Neurontin for pain. It took a month to taper to the correct dose but I think it is finally working maybe? My pain had averaged about a 7-8 daily before and would periodically get to the 9-10 range when I did stuff. I have been on it for about a month and a half now and my pain is at about a 5 sometimes a 6. I know that isn't a huge change, but it makes a huge difference to me to be at a 5 compared to an 8. My only problem is the medicine makes me fairly nauseas, it should eventually go away, but with some people it doesn't and with it being over a month not sure it will with me. It kind of makes me feel "out of it".... I don't know if the side effects are worth it or not. I mean, its hard to function with the side effects sometimes, but it was hard to function with the pain too. I think I am hoping to see if the side effects wear off like they do in some people before I give up since it appears to be helping with the pain.
Just curious if anyone else has been on it and if they saw any changes, etc?
Just curious if anyone has tried Topamax (Topiramate) for pain? I have been on it since about Dec 25th. It is a seizure drug, just like Lyrica and Neurontin. Neurontin didn't work for me, so I was put on Topamax as I had seen some online research about how it worked very differently than Lyrica and Neurontin for pain. It took a month to taper to the correct dose but I think it is finally working maybe? My pain had averaged about a 7-8 daily before and would periodically get to the 9-10 range when I did stuff. I have been on it for about a month and a half now and my pain is at about a 5 sometimes a 6. I know that isn't a huge change, but it makes a huge difference to me to be at a 5 compared to an 8. My only problem is the medicine makes me fairly nauseas, it should eventually go away, but with some people it doesn't and with it being over a month not sure it will with me. It kind of makes me feel "out of it".... I don't know if the side effects are worth it or not. I mean, its hard to function with the side effects sometimes, but it was hard to function with the pain too. I think I am hoping to see if the side effects wear off like they do in some people before I give up since it appears to be helping with the pain.
Just curious if anyone else has been on it and if they saw any changes, etc?
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Marie
RTBPI December 2008
C5-C6
Marie
RTBPI December 2008
C5-C6