One Proud Momma
-
nkjacoby
- Posts: 81
- Joined: Sat Jun 21, 2008 9:06 pm
- Injury Description, Date, extent, surgical intervention etc: Nicholas is 11 years old and his birth was complicated by a severe shoulder dystocia resulting in a severe LOBPI. He has had 5 surgeries to date with very little improvement. His left arm has never fully gained any functional use and has been completely flaccid until his last surgery. It now sits at a more natural position, but he is still unable to use his arm. However, his hand function was never limited until after his most recent surgery and is now completely limited due to an ulnar nerve entrapment. He is getting ready to have his 6th surgery in April to free the ulnar nerve from his last surgery. He is an amazing young man who never gives up on his dreams. He is my HERO!!!
One Proud Momma
I just wanted to brag. My son Nicholas has a very severe LOBPI. He is seven years old and in the first grade. After four surgeries, he has had no recovery and no return of function. We always encourage him to try everything and if he really puts his heart and mind towards doing something, anything is possible. He had been talking to my husband and I for weeks about wanting to do Jump Rope for Heart. So, we told him to go for it. We had to modify his method a little. His left arm hangs flaccid by his side and we knew this would be a tough one. We taught him how to hold the rope in both hands, but only swing the rope over his head using his right arm. He did it!!!!!!! He came home sooo exicted. He was able to jump rope 26 times!!!! We are sooo proud and he is even more proud than we are. I just wanted to post this message b/c there are many times that we are going to have to find ways to over come obstacles, but where there is a will there is usually a way around them. Way to go Nicholas!!!!!!!!!!!!!!!!
Mom to Nicholas 11 LOBPI, Dawson 7, and Kalyssa 5
-
Kimberly1108
- Posts: 13
- Joined: Wed Sep 17, 2008 9:52 pm
Re: One Proud Momma
woo hoo!!!!!!!!!!!!! CONGRATULATIONS!!!!!!!!!!!!!! 
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: One Proud Momma
YEAH!!!!!!!!!!!!!!!!!!!!!! 
Nicholas is a strong minded kid. My Mom always told me that if I looked at things and said "I Can't, it means you won't." Nicholas is a perfect example of how obpi children can do anything they put their minds to. OBPI children are very creative thinkers and usually find a way to do what ever it is they want to.
Congratulations to him and to his parents for encouraging Nicholas to be all that he can be and to have the courage to try.
I always told my kids there is no harm in failure, only in failure to try!
Nicholas is a strong minded kid. My Mom always told me that if I looked at things and said "I Can't, it means you won't." Nicholas is a perfect example of how obpi children can do anything they put their minds to. OBPI children are very creative thinkers and usually find a way to do what ever it is they want to. Congratulations to him and to his parents for encouraging Nicholas to be all that he can be and to have the courage to try.
I always told my kids there is no harm in failure, only in failure to try!
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: One Proud Momma
WOOHOO NICOLAS!!!!! 
COngratulations MOm & DAD and thanks for sharing this Milestone. WE LOVE Milestones and I personally hope you celebrate BIG TIME every one of 'em!
HUGS all around your house,
"Gramma Carolyn J
LOBPI/71
COngratulations MOm & DAD and thanks for sharing this Milestone. WE LOVE Milestones and I personally hope you celebrate BIG TIME every one of 'em!
HUGS all around your house,
"Gramma Carolyn J
LOBPI/71
Carolyn J
Adult LOBPI
Adult LOBPI
