Where did the private board go
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patpxc
- Posts: 315
- Joined: Sat Nov 03, 2001 1:06 am
- Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis - Location: Ohio
Where did the private board go
The new format looks great,but I don't see the adult private bord. Is is coming back?
Thanks
Pat
Thanks
Pat
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Where did the private board go
The mods know about it... They are looking into it I guess.
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KimW
- Posts: 58
- Joined: Fri May 09, 2008 9:24 pm
- Injury Description, Date, extent, surgical intervention etc: My daughter has a right obstetrical injury. She is 16.
Two surgeries include nerve graft and muscle release.
A great kid that plays soccer, rides horses, plays the piano
and clarinet.
Re: Where did the private board go
The private boards will return. We need to reprogram these boards. We are continuing to work on the boards but wanted to get the basic forums up and going as soon as possible. Thanks for your patience.
Kim West
"Children are likely to live up to what you believe of them." Lady Bird Johnson
"Children are likely to live up to what you believe of them." Lady Bird Johnson
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Where did the private board go
Should all be set now!
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patpxc
- Posts: 315
- Joined: Sat Nov 03, 2001 1:06 am
- Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis - Location: Ohio
Re: Where did the private board go
Not yet Still missing! Probably eating turkey this week and won't come on line till Monday!
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Where did the private board go
Patpxc,
Email Kath as she is the one who can allow people on it. It is up, but she may have missed a few people.
Email Kath as she is the one who can allow people on it. It is up, but she may have missed a few people.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Where did the private board go
Oh no Pat's name was there. I would not dare to leave her off 
.... LOL... since we only spoke a few weeks ago.
.... LOL... since we only spoke a few weeks ago.Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Where did the private board go
Porn shows b/c this board is much easier to join and leave messages. It's it's one downfall. I use this same one for another group I belong to and delete porn and members daily! I have tried to fix the problem with the security features and it crashes our site, so I wonder if it may be the same issue here.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Where did the private board go
I just read that Rich IS working on this problem.
Carolyn J
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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Jennifer P
- Posts: 220
- Joined: Wed Sep 09, 2009 7:12 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
- Location: Pacific Northwest
Re: Where did the private board go
Whoops, I emailed asking for access again thinking it was dropped with the upgrade 
