BPI Camp
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
BPI Camp
We are interested in setting up a Camp for those affected with brachial plexus injuries, and or their families scheduled to take place the summer of 2009.
We will be looking into various areas of the Midwest and Florida for the location.
We thought we would send out an e-mail message to see if this is what the brachial plexus community would like to see happen. If you are interested in attending, helping out, and or making a donation for the event, please let us know.
Sincerely,
Brenda
Wisconsin Brachial Plexus Injury Connection
BPI
Erbspalsy1@gmail.com
P.O. Box 23
Larsen, WI 54947
We are just trying to help out the BPI Community and UBPN with this endeavor. All and any help appreciated.
We will be looking into various areas of the Midwest and Florida for the location.
We thought we would send out an e-mail message to see if this is what the brachial plexus community would like to see happen. If you are interested in attending, helping out, and or making a donation for the event, please let us know.
Sincerely,
Brenda
Wisconsin Brachial Plexus Injury Connection
BPI
Erbspalsy1@gmail.com
P.O. Box 23
Larsen, WI 54947
We are just trying to help out the BPI Community and UBPN with this endeavor. All and any help appreciated.
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LisaJayne68
- Posts: 10
- Joined: Fri Sep 26, 2008 5:28 pm
Re: BPI Camp
I would LOVE to be able to meet with other adults with OBPI! I just recently found the boards and learned I wasn't alone!
I would like to just have some "down" time to visit informally and chat. It doesn't have to be any more than that. If there were presentations on the injuries and their lifelong effects that would be great. Having never totally understood what happened to me I've never known what to expect as I get older!
I would like to just have some "down" time to visit informally and chat. It doesn't have to be any more than that. If there were presentations on the injuries and their lifelong effects that would be great. Having never totally understood what happened to me I've never known what to expect as I get older!
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: BPI Camp
UBPN is not sponsoring or involved in a camp in 2009, we will however be sponsoring a camp in 2010. Please see the Camp message board for more information and explanation of our plans
Rich Looby
President UBPN
Rich Looby
President UBPN
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: BPI Camp
We did not mean to offend UBPN. My daughter was terribly disappointed about the 2009 Camp being canceled. We figured there was more out there just like her, who didn't want to wait 2 years for bpi camp.
We wanted to help out, we thought we would go a head and set something up. I'm sure it won't be as grand as the UBPN camp, but I do have experience in event planning.
Again, sorry if we have offended. As of right now plans will continue. We will try and set up a camp for 2009, unless there isn't enough wanting to go. I don't want to disappoint my daughter, and those like her in the BPI Community.
We wanted to help out, we thought we would go a head and set something up. I'm sure it won't be as grand as the UBPN camp, but I do have experience in event planning.
Again, sorry if we have offended. As of right now plans will continue. We will try and set up a camp for 2009, unless there isn't enough wanting to go. I don't want to disappoint my daughter, and those like her in the BPI Community.
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: BPI Camp
Hi Brenda,
Like I emailed, there is no offense on our (UBPN) part. We just want to make sure that the community is aware that this not a UBPN camp, nor is it helping UBPN towards UBPN Camp 2010.
We wish you luck and hope for a great turnout!
Rich
President UBPN
Like I emailed, there is no offense on our (UBPN) part. We just want to make sure that the community is aware that this not a UBPN camp, nor is it helping UBPN towards UBPN Camp 2010.
We wish you luck and hope for a great turnout!
Rich
President UBPN
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: BPI Camp
We are still trying to pull something together. Hopefully, we will know soon one way or another.
Brenda
BPI Connection
P.O. Box 23
Larsen, WI 54947
http://www.freewebs.com/wbpic
erbspalsy1@gmail.com
Message was edited by: Brenda333
Brenda
BPI Connection
P.O. Box 23
Larsen, WI 54947
http://www.freewebs.com/wbpic
erbspalsy1@gmail.com
Message was edited by: Brenda333
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Cole's Mommy
- Posts: 95
- Joined: Sat Dec 15, 2007 2:48 pm
Re: BPI Camp
Hi there Sali!
We are in Nebraska...I've wondered if there was anyone near by. We would love to get together! Where in NE are you?
Nicole
We are in Nebraska...I've wondered if there was anyone near by. We would love to get together! Where in NE are you?
Nicole
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runningwaters46@yahoo.com
- Posts: 1
- Joined: Thu Mar 26, 2009 9:26 pm
Re: BPI Camp
my Daughter is very interested in camp this summer and it's been a long time since we have had a vacation with the family. Her name is Brittney A. Ice she's thirteen years old. Brittney is very smart too likes computers and wrestling,computer games. And is looking for a pen pal for support.
Brittney was born with Erb's pulsey and has been in and out of physical therapy and swimming also.Never had surgery.
Brittney was born with Erb's pulsey and has been in and out of physical therapy and swimming also.Never had surgery.
