Mayo Clinic on 12/16
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Mayo Clinic on 12/16
WOW Kath from Illinios, That Penthouse was a Vacation in my book!
Hugs all around the Boards
Carolyn J
LOBPI adult/70
Hugs all around the Boards
Carolyn J
LOBPI adult/70
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Mayo Clinic on 12/16
I'm telling you, all you have to do is ask. Ask the manager. My husband didn't believe me, I just took everyone up to our "house" (room) and my husband looked at me and said "what did you do???" I had to show him the paper work to prove what it cost. Ask, just ask......
And do you clothes shopping while you are there-0% tax on clothing.
And do you clothes shopping while you are there-0% tax on clothing.
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raisab
Re: Mayo Clinic on 12/16
We are here waiting for an MRI....They are so kind here! Everyone including the other patients are so friendly. Minnesota seems to have retained something my part of the nation lost!
Thank you all for the advice on restaurants, shopping and hotels! There is a chance we may be here over Christmas, wonder if the Radisson would do the same for us? Worth a try!!!!
Thank you all for the advice on restaurants, shopping and hotels! There is a chance we may be here over Christmas, wonder if the Radisson would do the same for us? Worth a try!!!!
Re: Mayo Clinic on 12/16
Hello
I'll be at Mayo Dec 17th thru the 20th. This is my 5th trip. I avulsed c6,7,8 T1. Feel free to give me call if there's anything I can do to help. 703-618-3875
I'll be at Mayo Dec 17th thru the 20th. This is my 5th trip. I avulsed c6,7,8 T1. Feel free to give me call if there's anything I can do to help. 703-618-3875
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raisab
Re: Mayo Clinic on 12/16
Hi Aaron,
We are here also...and it looks like we are both from Northern Virginia. Look for the teenager with the dark glasses and black hair. (Me) His mom short haiar and on a little blue computer.
We are here also...and it looks like we are both from Northern Virginia. Look for the teenager with the dark glasses and black hair. (Me) His mom short haiar and on a little blue computer.
Re: Mayo Clinic on 12/16
I had an appointment on the 17th and we in Northern Illinois got slammed with bad weather. Now today we under a sever winter storm watch with heavy winds, hail and then snow between 12-15 inches. I'm stay home. I rescheduled for Jan.............anyone going in Jan?
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Mayo Clinic on 12/16
Please share/post if you find each other. 
HUGS all around,
Carolyn J
LOBPI/70 & Feisty!!
Message was edited by: Carolyn J
HUGS all around,
Carolyn J
LOBPI/70 & Feisty!!
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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raisab
Re: Mayo Clinic on 12/16
Sorry I didn't follow=up after our visit!
We met the team and after performing all those "hit" tests...for those of you who have been there, they tap and punch and vibrate and pinch and prick....seeing what kind of response they get from the nerves and muscles.
They have advised waiting until a recheck in February as they seem to think C7 & C8 maybe coming back. That was great news. As for T1 which controls half of the middle finger and the ring and pinky, they did not detect any nerve signal there at all. They also advised to wait and see as it is impossible to fix that nerve in adults. The best they could offer was tendon transfer which would give some grip function but uncoordinated movement....
Right now all we can do is continue the therapies, wait and pray.
BTW, I was so very impressed with the entire Mayo Clinic. The patient truly comes first here, they have truly lived up to their mission. What a wonderful place!
We met the team and after performing all those "hit" tests...for those of you who have been there, they tap and punch and vibrate and pinch and prick....seeing what kind of response they get from the nerves and muscles.
They have advised waiting until a recheck in February as they seem to think C7 & C8 maybe coming back. That was great news. As for T1 which controls half of the middle finger and the ring and pinky, they did not detect any nerve signal there at all. They also advised to wait and see as it is impossible to fix that nerve in adults. The best they could offer was tendon transfer which would give some grip function but uncoordinated movement....
Right now all we can do is continue the therapies, wait and pray.
BTW, I was so very impressed with the entire Mayo Clinic. The patient truly comes first here, they have truly lived up to their mission. What a wonderful place!
