worried about numbness in both hands
Re: worried about numbness in both hands
Ok got that done and over with 2 hrs glad the doctor gave me a valuim to take other wise I never would have been able to hold still. Don't see the doctor till the 25th
Thanks for all your prayers it really helps I don't know what I would do without all your caring support
Mare
Thanks for all your prayers it really helps I don't know what I would do without all your caring support
Mare
Re: worried about numbness in both hands
Well I saw the neuro again yesterday with the new MRI and blood work that was fine and the MRI with contrast said the same thing as the last MRI possible MS or Tumor so he was like I think its MS even though you don't have any symptoms so I'm going to refer you to the MS doctor that works with me. So I asked shouldn't we be ruling out a tumor since I do have symptoms of that or are we going to wait till it gets so bad it kills me?? I asked about getting to see a neuro surgeon and an MRI of the whole spine and spinal tap not that I want it be poked with a huge needle but I want to know whats wrong with me. So he gave me a script to get a complete MRI of the spine not just the neck like the other two. And he is going to have a neuro surgeon call me but I didn't wait I called University of PA and am trying to get to see one of there Neuro surgeons. So its back to waiting
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: worried about numbness in both hands
Mare,
I just know that you will get answers at the University of Pennsylvania. I'm still "stormin heaven" for you.
<<<<HUGS))))
Carolyn J
I just know that you will get answers at the University of Pennsylvania. I'm still "stormin heaven" for you.
<<<<HUGS))))
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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brandonsmom
- Posts: 1401
- Joined: Mon Nov 22, 2004 4:43 pm
Re: worried about numbness in both hands
Oh Mare,
How horrible, I love it.....well, you have no symptoms, but I think you have MS!!!!! Wow , now we really know whay they call it "PRACTICING" medicine !!! Take care and we will be continuing to pray for you !!!
GAYLE
How horrible, I love it.....well, you have no symptoms, but I think you have MS!!!!! Wow , now we really know whay they call it "PRACTICING" medicine !!! Take care and we will be continuing to pray for you !!!
GAYLE
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: worried about numbness in both hands
Mare
This is hard and for a change I have to agree with your doctor when he said to see and MS doctor. You need the other tests to rule out a tumor but some of your recent episodes could lead a doctor to think it's MS. Especially the L'Hermitte's sign. You know my daughter just went through this and has MS. A spinal tap is supposed to rule out MS but my niece had it and they said no MS and then years later they finally diagnosed her with MS. I think you should rule out a tumor first...
The reason MS is so hard to diagnose is because of all the various ways it show up. MS had many different types and is often not diagnosed at all or miss diagnose so ruling out all other possible things is a good way to go.
Let's hope you get to the bottom of this and can move forward to gaining some better health.
Kath robpi/adult
This is hard and for a change I have to agree with your doctor when he said to see and MS doctor. You need the other tests to rule out a tumor but some of your recent episodes could lead a doctor to think it's MS. Especially the L'Hermitte's sign. You know my daughter just went through this and has MS. A spinal tap is supposed to rule out MS but my niece had it and they said no MS and then years later they finally diagnosed her with MS. I think you should rule out a tumor first...
The reason MS is so hard to diagnose is because of all the various ways it show up. MS had many different types and is often not diagnosed at all or miss diagnose so ruling out all other possible things is a good way to go.
Let's hope you get to the bottom of this and can move forward to gaining some better health.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: worried about numbness in both hands
Well the spinal tap is to rule out a tumor the doctor said it wouldn't tell about MS but the brain MRI should no brain lesions the l"hermitte's can show either tumor or MS but its strange that the doctor has not put a name to the vibration or buzzing in my spine you ladies put a name to it right away and he has said nothing about it and really is not concerned by it said it could be any number of things that are causing this. And this is the reason I'm sitting on his examime table to find out what this weird sensation is no other reason for me being there. Well they moved my next MRI to tomorrow then the 4th is the neurosurgeon at RWJ the MS doctor is on the 18th and I'm still waiting for an appointment at University of PA. These doctors are starting to get on my nerves its prtty bad when I have to tell them what test I want and what type of doctors I need to see.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: worried about numbness in both hands
Mare
Many times the only way to determine that someone has MS is by Spinal Tap. There is something that shows up in the fluid. It's a marker of some kind for MS.
Man can these docs drive you crazy. You must be your on advocate both for bpi and all things now.
Kath
Many times the only way to determine that someone has MS is by Spinal Tap. There is something that shows up in the fluid. It's a marker of some kind for MS.
Man can these docs drive you crazy. You must be your on advocate both for bpi and all things now.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: worried about numbness in both hands
Mare,
The lumbar puncture (spinal tap) will or rather can show what are called O-Bands.
OligoClonal Bands (Gamma Globulin Bands) - A postive finding from the chemical analysis of ImmunoGlobulin (IgG) found in CerebroSpinal Fluid. IgG Bands indicates an Intrathecal production of AntiBodies. This signifies an Immune response to a nonspecific CNS Antigen.
- IgG Banding is commonly found during a current or very recent exacerbation. It is present in 50 - 75% of patients undergoing a diagnosis for MS, and eventually in 87% - 95% of all MSers.
http://www.geocities.com/hotsprings/3468/gloss.html
The lumbar puncture (spinal tap) will or rather can show what are called O-Bands.
OligoClonal Bands (Gamma Globulin Bands) - A postive finding from the chemical analysis of ImmunoGlobulin (IgG) found in CerebroSpinal Fluid. IgG Bands indicates an Intrathecal production of AntiBodies. This signifies an Immune response to a nonspecific CNS Antigen.
- IgG Banding is commonly found during a current or very recent exacerbation. It is present in 50 - 75% of patients undergoing a diagnosis for MS, and eventually in 87% - 95% of all MSers.
http://www.geocities.com/hotsprings/3468/gloss.html
Re: worried about numbness in both hands
So they will find nothing? since I'm not having a current and have't had a recent exacerbation I'v had nothing but the tingling in my spine when I look down which the doctors said could be anything and thats all I want to know about. Boy they better not be poking me for no reason, can they put you to sleep for that the neurologist said no but he's not the one doing it.
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: worried about numbness in both hands
They can find something anyway in the spinal fluid as you have had recent attacks. Not definite, but possible.
They freeze you back/patch where they insert the needle for the LP. It's not that bad really, I've had them before. Just remember to drink plenty of fluids after, and to lie down for one hr after they do it. You may get a headache from it.
They freeze you back/patch where they insert the needle for the LP. It's not that bad really, I've had them before. Just remember to drink plenty of fluids after, and to lie down for one hr after they do it. You may get a headache from it.
