Introductions thanks to 20/20...lurkers welcome
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: Introductions thanks to 20/20...lurkers welcome
Thanks Carolyn,
I do host a chat on Thursday nights because I remember how much some one elses chst helped me out when I was first researching bpi's. Just knowing there are others out there like you makes all the difference in the world. The chats start at 8:30 CST 9:30 EST and can go for hours. Feel free to stop in, some one is usually there pretty late. If you want to check out the site bfore hand to make sure the chat works, or just read my story (I keep a current journal and a photo album on there) feel free the home page is www.freewebs.com/bpimn
I look forward to getting to know you,
Amy 19 ROBPI from MN
I do host a chat on Thursday nights because I remember how much some one elses chst helped me out when I was first researching bpi's. Just knowing there are others out there like you makes all the difference in the world. The chats start at 8:30 CST 9:30 EST and can go for hours. Feel free to stop in, some one is usually there pretty late. If you want to check out the site bfore hand to make sure the chat works, or just read my story (I keep a current journal and a photo album on there) feel free the home page is www.freewebs.com/bpimn
I look forward to getting to know you,
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
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cristina
Re: Introductions thanks to 20/20...lurkers welcome
Patti,
I can't believe how similar our experiences are. I never knew what my disability was called, until I went to the doctor because I was having problems with my left side (my good side) and he asked about my right arm I told him I just knew that I had been injuried at birth, he mentioned brachial plexus injury so I rushed home and looked it up on the web, and I found DR.Nath website, called him and hopefully will have surgery in the fall. And by the way I'm 26 years old, I don't have any kids or a husband I have a boyfriend( but thats not going so well). Anyway I just felt so happy to find someone with similar experience.
I can't believe how similar our experiences are. I never knew what my disability was called, until I went to the doctor because I was having problems with my left side (my good side) and he asked about my right arm I told him I just knew that I had been injuried at birth, he mentioned brachial plexus injury so I rushed home and looked it up on the web, and I found DR.Nath website, called him and hopefully will have surgery in the fall. And by the way I'm 26 years old, I don't have any kids or a husband I have a boyfriend( but thats not going so well). Anyway I just felt so happy to find someone with similar experience.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Introductions thanks to 20/20...lurkers welcome
Move to the top for newbies.
Kath
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: Introductions thanks to 20/20...lurkers welcome
Hi! I am interested in hearing more about this. I am a police officer that sustained a BPI and am attempting to return to police work... Does she have limited function in her arm or has she recovered fully?
please Email me at police4946@aol.com Thank you so much
David
please Email me at police4946@aol.com Thank you so much
David
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Introductions thanks to 20/20...lurkers welcome
Moved to the top of page for newbies.
Kath
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Introductions thanks to 20/20...lurkers welcome
" Here's a site for amputees about it but the tips work for us too, it also warns against using medication to stop the pain so be careful :0) http://amputee-online.com/amputee/phantom.html
Carolyn J
Carolyn J
