Hi, my name is Paula

[RoseAnne&Roberto]

My name is RoseAnne.I have a son Roberto 2 1/2yr has LOBPI.He was born a week early and weighed 9lb 1 oz.He has been in therapy since 2months old.He has made a good amount of recovery. No surgeries to date. Has been recommended the capsulodesis surgery. He is a very charming young boy & likes to be independent. He loves blues clues & bob the builder & caliou.
I also have 2 daughters 5yr & 6months.
I wish the best to everyone & their children!

[Raquel and Kaylee]

Hi everybody. We are from Avondale, AZ. My husband's name is Dale, I'm Raquel, we have a son Matthew and our bpi baby is Kaylee. Matthew is 4 1/2 and goes to preschool, which he loves. Kaylee will be two next month. She had primary surgery when she was 9 months. She was recommened for the mod quad 6 months ago, but we decided to give her more time. She started getting chiropractic adjustments and that really improved her range. Two weeks ago, Dr. Nath was in town and was impressed with her movement. He said at this point to just wait. She can touch the top of her head. He said if she is able to touch the back of her head within the year, a future surgery would be unlikely. We are so glad we waited.

I really like this idea, too bad we can't add pictures to our posts. I'd love to be able to put a face with the name. It was so nice to meet everyone.

[Sharon G.]

My daughter's name is Tess. She is almost 8 yrs old. She has a complete rt. bpi and has had 4 surgeries at TCH. She is doing very well and really loves life!

[Jocelisse's Parents]

Hi I'm Ivelisse and my husband is Jose we has been happy married for seven years. Our daughter is Jocelisse and she is 5 years old and Left obp. We have another daughter Janelisse she is two.

Jocey had total avulsion from C-1, C-2,....etc. to T-1 also she have Horner's and a very severe case of constipation. She was the worse case ever seen at the TCH when they did the primary surgery. Jocey had three surgeries yet. Primary at six months(13 hours), Mod Quad one week before five years (2 hours)and Gracilis Muscle Transfer two months ago(12 hours).

We are from Puerto Rico but we has been living in Houston for almost four years. We moved here for her medical treatment. We are living alone here but with a big UBPN family everywhere.

[admin]

for the new people. Meet our family.

[kalliesmom]

Hi my name is Jessica(24) and my husband of 4yrs is Brian(26).
Our daughter Kallista was born with RT OBPI, she is now 3 and is 1yr 5mo post mod quad, she has therapy 3X a week (ot & aquatic). She will proably have the bicep lengthening surgery later this year. She is a very srongwilled stubborn child and absolutly loves animals, We have a horse, a dog, a cat, a fish and a bird. (my horse I've had since I was 16) Her favorite movies are National Velvet, Black Beauty, Black Stallion, Veggie Tales & Shrek.
And last but certinly not least we have a 9mo handsome little boy named Korban who was born by c-section.
that should about do it for our introductions.
thanks a bunch

[Pam W]

Hi,my name is Pam. I have 3 children Laurel age 10, John robpi age 8, and Sarah age 6. We live in Minnesota and John has had had 2 surgeries at the Mayo Clinic in Rochester.
We attended the UBPN camp in Colorado last summer which was a wonderful experience for our whole family.

John enjoys playing soccer, hockey, baseball and skiing(without poles!!). His latest request is he wants to try BMX biking. Scary for the mom.

Currently, we are doing chiropractic care for GI Reflux which may or may not be related to the bpi. Otherwise no formal therapy anymore.

[Bonnie]

I am Bonnie and have been visiting here since January.

My daughter is Avery and she was born with a ROBPI. She has very limited function, she has weak wrist and hand and VERY strong pecs but that's it. She was born at 10 lbs 4 oz on Jan. 18th.

We just found out yesterday that she is being referred to Toronto BP Clinic for an assessment within the next 4 weeks or so. We live in Saskatchewan.

I also have a 4 y/o daughter (Alison) who was born at 6 lbs 3 oz and doesn't have an injury. She is wonderful with Avery.

[Glenis]

I'm Glenis. My daughter, Shannah is 8 years old and has right erbs palsy since birth. She weighed in at 8lbs 10oz which seems to be below average for this kind of injury. Her sister, Molly, is 6 next week. Weighed heavier but no injury thank goodness. We live in Derbyshire in the UK. Shannah has always had very good ROM. She underwent coracoidectomy and botox injection in September and we found out last week surgeon doesn't need to see her for another year.