Help find a cure for BPI, Paralysis, and More!
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Christopher
- Posts: 845
- Joined: Wed Jun 18, 2003 10:09 pm
- Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02
Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed
BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.
Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)
"Do what you can, with what you have, where you are."
~Theodore Roosevelt - Location: Los Angeles, California USA
Help find a cure for BPI, Paralysis, and More!
The Christopher Reeves Paralysis Act, if passed through Congress, would benefit many sufferers from many different types of disabilities! Help expedite the cure for paralysis!
30 seconds is all it takes to fill this out and send it!
There is NO controversy involving cellular science with this Act!
http://www.christopherreeve.org/c.geIML ... index.aspx
This Bill's purpose is to help connect scientists doing similar work to enhance understanding and speed discovery of better treatments and cures. As many of us know, there is very little correspondence in the medical community about our type of injury. The same holds true for individual researchers trying to find cures. A lot of research is redundant, different scientists working on the same thing at the same time, with out the knowledge of possible collaborations. This would help unify that while also making researchers more aware of previous studies that are gathering dust in laboratory closets. Utilizing the Veteran’s Health Administration facilities to improve paralysis research by tracking data within the world’s largest system of hospitals.
We are all in the same boat, so lets paddle together! Please...
Thanks,
Chris
PS - While at the site, there are three other campaigns you can support with a click of a button. They involve Stem Cells. If you have a problem with that, then don't. But if you have questions about it, then be curious and read what is proposed and what is at stake. One of them is fighting to ban the possibility of human cloning.
And once you've entered in your info, it comes up automatically again. So supporting the other campaigns is really just a click away...
30 seconds is all it takes to fill this out and send it!
There is NO controversy involving cellular science with this Act!
http://www.christopherreeve.org/c.geIML ... index.aspx
This Bill's purpose is to help connect scientists doing similar work to enhance understanding and speed discovery of better treatments and cures. As many of us know, there is very little correspondence in the medical community about our type of injury. The same holds true for individual researchers trying to find cures. A lot of research is redundant, different scientists working on the same thing at the same time, with out the knowledge of possible collaborations. This would help unify that while also making researchers more aware of previous studies that are gathering dust in laboratory closets. Utilizing the Veteran’s Health Administration facilities to improve paralysis research by tracking data within the world’s largest system of hospitals.
We are all in the same boat, so lets paddle together! Please...
Thanks,
Chris
PS - While at the site, there are three other campaigns you can support with a click of a button. They involve Stem Cells. If you have a problem with that, then don't. But if you have questions about it, then be curious and read what is proposed and what is at stake. One of them is fighting to ban the possibility of human cloning.
And once you've entered in your info, it comes up automatically again. So supporting the other campaigns is really just a click away...
Re: Help find a cure for BPI, Paralysis, and More!
Good info Chris. Mine has been submitted. Carry on, sir
Mike
Mike
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Christopher
- Posts: 845
- Joined: Wed Jun 18, 2003 10:09 pm
- Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02
Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed
BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.
Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)
"Do what you can, with what you have, where you are."
~Theodore Roosevelt - Location: Los Angeles, California USA
Re: Help find a cure for BPI, Paralysis, and More!
You're the Man! Who's next?
Re: Help find a cure for BPI, Paralysis, and More!
Mine was submitted today...at least I hope it was!
After hitting the submit button, and seeing the 'thank you' window, the whole site crashed on me when I tried to get to the Stem cell page. :0(
Keep on keeping on Christopher...you are like a breath of fresh air! :0)
Lizzy F
After hitting the submit button, and seeing the 'thank you' window, the whole site crashed on me when I tried to get to the Stem cell page. :0(
Keep on keeping on Christopher...you are like a breath of fresh air! :0)
Lizzy F
Re: Help find a cure for BPI, Paralysis, and More!
All signed up!!!!
Kath in Chicago
Kath in Chicago
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Help find a cure for BPI, Paralysis, and More!
I just submitted on behalf of my husband : )
Shafali.
Shafali.
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Help find a cure for BPI, Paralysis, and More!
Just sent mine and have also emailed the link to friends and family in hope that they will do the same.... thanks Chris!
COurt
COurt
Re: Help find a cure for BPI, Paralysis, and More!
I'm in and sent to 5 friends.....Who's next?
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Help find a cure for BPI, Paralysis, and More!
friend of mine who sent a letter got a respone!! Here it is...
Dear M. Garrett:
Thank you for contacting me regarding the Christopher Reeve Paralysis Act (S.828). I appreciate hearing your views on this matter.
S.828 was introduced by Senator Tom Harkin (D-IA) on April 18, 2005. This bill would allow for the expansion of paralysis research programs by providing $25 million in funding over the next three years for research and the implementation of programs focused on improving the quality of life for individuals with paralysis. In addition, funding would support research into treatments and therapies for persons suffering with paralysis. S.828 has been referred to the Senate Committee on Health, Education, Labor, and Pensions where it awaits further consideration.
Thank you again for writing.
Sincerely,
Carl Levin
Any one else get anything back?? I am interested to see...
COurt
Dear M. Garrett:
Thank you for contacting me regarding the Christopher Reeve Paralysis Act (S.828). I appreciate hearing your views on this matter.
S.828 was introduced by Senator Tom Harkin (D-IA) on April 18, 2005. This bill would allow for the expansion of paralysis research programs by providing $25 million in funding over the next three years for research and the implementation of programs focused on improving the quality of life for individuals with paralysis. In addition, funding would support research into treatments and therapies for persons suffering with paralysis. S.828 has been referred to the Senate Committee on Health, Education, Labor, and Pensions where it awaits further consideration.
Thank you again for writing.
Sincerely,
Carl Levin
Any one else get anything back?? I am interested to see...
COurt
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Help find a cure for BPI, Paralysis, and More!
After I said that my friend got that letter, I got the same one and also this one...
Thank you . . .
. . . for contacting me regarding your support for increased research for individuals living with paralysis. I share your views and am pleased to tell you that I am a cosponsor of the Christopher Reeve Paralysis Act.
As you know, the Christopher Reeve Paralysis Act (S.828) would increase research funding for paralysis to improve rehabilitation and the quality of life for persons living with paralysis and other physical disabilities. This bill is currently pending before the Committee on Health, Education, Labor, and Pensions. I will continue to support this legislation when it comes to the full Senate for a vote.
I know how difficult it must be to face these challenges in your family every day and I admire your courage. Thank you again for contacting me. Please do not hesitate to do so again if I can be of assistance to you in the future.
Sincerely,
Debbie Stabenow
United States Senator
I am sure they are just sent in response to the thing I sent but Im glad ot knwo that they did recieve it, somewhere some how!!
COurt
Thank you . . .
. . . for contacting me regarding your support for increased research for individuals living with paralysis. I share your views and am pleased to tell you that I am a cosponsor of the Christopher Reeve Paralysis Act.
As you know, the Christopher Reeve Paralysis Act (S.828) would increase research funding for paralysis to improve rehabilitation and the quality of life for persons living with paralysis and other physical disabilities. This bill is currently pending before the Committee on Health, Education, Labor, and Pensions. I will continue to support this legislation when it comes to the full Senate for a vote.
I know how difficult it must be to face these challenges in your family every day and I admire your courage. Thank you again for contacting me. Please do not hesitate to do so again if I can be of assistance to you in the future.
Sincerely,
Debbie Stabenow
United States Senator
I am sure they are just sent in response to the thing I sent but Im glad ot knwo that they did recieve it, somewhere some how!!
COurt
