Really cool site
Re: Really cool site
I fixed it for you.
Funny how there are none on the West side!
Funny how there are none on the West side!
Re: Really cool site
I am in...west coasters are still feeding the kiddies dinner. etc. I bet we see a few!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Really cool site
Mandie
Thank you.
I wonder how many on the West Coast will sign in.
Kath ( adult/obpi)
Thank you.
I wonder how many on the West Coast will sign in.
Kath ( adult/obpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: Really cool site
I just signed in (west coaster)...it is cool! I, however, being in a rush...didn't quite get it and uploaded two of the same pic. How do I remove one?
I'll try to figure it out in a bit (other fires to put out inbetween, but if anyone knows...please fill me in!)
Peggy
I'll try to figure it out in a bit (other fires to put out inbetween, but if anyone knows...please fill me in!)
Peggy
Re: Really cool site
I just signed in, havent' posted any picts yet,,, Another one for the midwest.
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tylergsmom
- Posts: 282
- Joined: Thu Jan 29, 2004 6:56 pm
- Injury Description, Date, extent, surgical intervention etc: Hi! I am Laura, the mom of Tyler, who has a ROBPI. I've been a member of this site since 1998 and owe a great deal to the wonderful people in the UBPN community who have helped us along the way get what we needed to get done for Tyler. Tyler is now 14 years old and in the 9th grade. He's a super bright kid and loves his video games. Tyler had the mod quad surgery with Dr. Shenaq shortly before he passed. That was his first and only surgery. Now that he is older he is requesting additional surgery. He'd like to be able to supinate. Our goal is for Summer 2013.
- Location: Gulf Breeze, FL
Re: Really cool site
Ok, how do you get the photo so show up next to your name? I uploaded the photo and it's on the site, but it's not next to my name.....Help.
Laura LeNoir, Mom of Tyler, Age 14, ROBPI
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Really cool site
I just posted and am on the West Coast too. Yea! this is a neat site to find out where all of us are.
Thanks,Mandie.
Hugs all around,
Carolyn J
Thanks,Mandie.
Hugs all around,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Really cool site
I added myself... think I am the only Canadian so far... though the map doesn't show up for me...
Marieke
Marieke
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FullofFaith
- Posts: 14
- Joined: Tue Oct 04, 2005 8:30 pm
Re: Really cool site
Mandie,
I goofed some how. I also have multiple pictures and shouts. How do you fix it?
Thanks, Tracy
I goofed some how. I also have multiple pictures and shouts. How do you fix it?
Thanks, Tracy
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Really cool site
I got the map to show.. had to use Netscape instead of Safari. I am the only Canadian... I am sure there are more, c'mon guys, sign up it's neat!
Marieke
Marieke
