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Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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tylergsmom
Posts: 282
Joined: Thu Jan 29, 2004 6:56 pm
Injury Description, Date, extent, surgical intervention etc: Hi! I am Laura, the mom of Tyler, who has a ROBPI. I've been a member of this site since 1998 and owe a great deal to the wonderful people in the UBPN community who have helped us along the way get what we needed to get done for Tyler. Tyler is now 14 years old and in the 9th grade. He's a super bright kid and loves his video games. Tyler had the mod quad surgery with Dr. Shenaq shortly before he passed. That was his first and only surgery. Now that he is older he is requesting additional surgery. He'd like to be able to supinate. Our goal is for Summer 2013.
Location: Gulf Breeze, FL

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Post by tylergsmom »

Hey Everyone--We just got back from Houston and Tyler's Mod Quad surgery went great! He was so brave throughout the entire ordeal. Dr. Shenaq did the surgery and he is just wonderful! Everything was explained to us in great detail and we pretty much knew what to expect with the hospital and how it was all going to work. We were very impressed! We are very much looking foward to his recovery and progress.

I wanted to thank Julia at Wings for helping us with our airline tickets---it's just such a great program! I also wanted to thank Kimberly and her family for picking us up at the airport in Houston---THANK YOU!!! I have just met some incredible people on this site and you have all helped me (and my family) in some way. Thank you to all of you!!!
Laura LeNoir, Mom of Tyler, Age 14, ROBPI
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

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Post by Kath »

I am so glad that things went well and the surgery is over. I can't wait to hear about Tyler's progress.
Kimberly is was so kind to help you out they are a lovely family. I met them at Camp UBPN 2003

Kath
Kath robpi/adult

Kathleen Mallozzi
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kamren
Posts: 262
Joined: Sun Feb 15, 2004 7:19 am

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Post by kamren »

I am glad to hear Tyler is doing so well:) It was our pleasure to help out a bit.

I am sorry Kath, but I haven't ever met you, actually Tyler is the first person I ever met with BPI:), but I look forward to meeting many others in the future!!
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

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Post by Kath »

OPS... Kimberly I have you mixed up with another Texas family... sorry but look forward to meeting you someday...

Kath
Kath robpi/adult

Kathleen Mallozzi
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

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Post by Carolyn J »

I am so happy things went well for Tyler and your family. Yes, we all have found wonderful helpful "Angels" on these Boards. Please keep us posted on Tyler's progress.I hope everyone is planning AHEAD to attend CAMP 2005 in Washington DC....

Kamren, You have to forgive Kath, she had another Senior Moment!! LOL
Carolyn
Carolyn J
Adult LOBPI
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

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Post by Kath »

Carolyn... sometimes I have brain freeze and I am not even eating ice cream .... is that a senior moment too...
LOL...LOL... just as long as you and John are more senior I am happy... LOL... I prefer to call it a bpi moment... now that I know so much about it can I blame every mistake on it... huh!
Kath
Kath robpi/adult

Kathleen Mallozzi
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m&mmom
Posts: 1395
Joined: Sun Nov 04, 2001 9:34 am

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Post by m&mmom »

Glad all went well.

Wishes for a great recovery.

Cindy
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

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Post by Carolyn J »

Sorry Kath, it is ALL Senior Moments now!! Any time after 60 you can no longer blame memory problems on BPI!! I know this "for sure". LOL LOL
Carolyn
Carolyn J
Adult LOBPI
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