booklet for help for kids/daily living tasks

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:
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booklet for help for kids/daily living tasks

Post by marieke »

http://www.aboutkidshealth.ca/En/Health ... iving.aspx


Take a look at this :) It's from The Toronto Sick Kids Hospital in Ontario, Canada.
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
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Re: booklet for help for kids/daily living tasks

Post by Carolyn J »

Thanks for posting, Marieke. Some Great Tips even for me! :mrgreen:
Carolyn J
LOBPI/72
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: booklet for help for kids/daily living tasks

Post by F-Litz »

that booklet was nicely done
great find!
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lawrey
Posts: 29
Joined: Thu Jun 12, 2008 11:03 am

Re: booklet for help for kids/daily living tasks

Post by lawrey »

Thank you so much for posting this!!!
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Nattydee
Posts: 3
Joined: Tue Feb 15, 2011 12:15 am
Injury Description, Date, extent, surgical intervention etc: Baby

Re: booklet for help for kids/daily living tasks

Post by Nattydee »

Thank you very much for sharing the cool booklet.
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