Awareness Video
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Awareness Video
I would like to thank everyone that submitted photos for our awareness video that was played at our benefit dinner last weekend. Out of the photos/stories received, we used 4 to go along with ours. We hope that this video will help spread the awareness about these injuries. You can view it at http://www.youtube.com/watch?v=efjJZWNQyMw
The benefit dinner was a success. I am very pleased with the response and the amount of people we were able to reach to spread the awareness about these injuries!! We will be having our 2nd Annual BPI Family & Friends Picnic in October to kick off BPI Awareness Week. This will be a free event. More details to come!!
The benefit dinner was a success. I am very pleased with the response and the amount of people we were able to reach to spread the awareness about these injuries!! We will be having our 2nd Annual BPI Family & Friends Picnic in October to kick off BPI Awareness Week. This will be a free event. More details to come!!
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Awareness Video
Looks great! Glad that I could help!
marieke 33, LOBPI
marieke 33, LOBPI
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: Awareness Video
Thanks Marieke!!!!!!
Re: Awareness Video
I have not cried that much in soooo... long. To see all of these poor children affected by this. I posted this on my facebook for everyone I know to see because I don't feel that people quite understand. All they tell me is how he looks like there's nothing even wrong with him. That should make me happy, right? I feel like they have no idea. I'm just grateful that my son is healthy otherwise and for the most part, happy. He's been a miracle in this. Gone from no movement at all to where he's at now. It's the unexpected. What a wonderful job!
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jill's mom
- Posts: 23
- Joined: Mon Mar 10, 2008 12:54 am
Re: Awareness Video
Thanks for sharing. It is nice to know that there is a community of people who understand what we have been through so we can support each other and share ideas.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Awareness Video
Wonderful video!! this sure will help parents explain to family members and others a child's "Injury Journey".
I am soooo happy your fund raiser was a success!
Hugs all around,
Carolyn J
LOBPI/adult/71
I am soooo happy your fund raiser was a success!
Hugs all around,
Carolyn J
LOBPI/adult/71
Carolyn J
Adult LOBPI
Adult LOBPI
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Janet&joseph
- Posts: 7
- Joined: Sun May 31, 2009 4:13 pm
Re: Awareness Video
Nice. Is there like one of those awareness ribbons for EP? If not, I'm a graphic designer and would love to make one.
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Awareness Video
Janet, if you looks here: http://ubpn.org/
scroll down and look on the right side. There under Awareness you will see UBPN Store (not the Amazon one) and you can see what they have. There are ribbons there
Marieke 33, LOBPI
scroll down and look on the right side. There under Awareness you will see UBPN Store (not the Amazon one) and you can see what they have. There are ribbons there
Marieke 33, LOBPI
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Janet&joseph
- Posts: 7
- Joined: Sun May 31, 2009 4:13 pm
Re: Awareness Video
marieke , Thanks !!
I meant more digital so I can put it on my web page. Is it silver?
I meant more digital so I can put it on my web page. Is it silver?
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Awareness Video
LOL.. ah!
Yes I think it is supposed to be silver.. you could add blue in there too I should think, as our awareness bracelets are blue
Yes I think it is supposed to be silver.. you could add blue in there too I should think, as our awareness bracelets are blue
