United Brachial Plexus Network, Inc.

I have an appointment with him on Oct 28 and am second guessing after reading the comments on this message board.

I would highly recommend seeing a BPI specialist. You can find listings on the resources link at the top of the page, then medical and US. Many on here that are adults have been to Mayo, my son included, can't say enough good things about them. We were fortunate in that our dr's told us right away that they did not have the expertise in BPI that is needed.
Sue

Pam, I dont know where all you've checked but a lot of people on here suggest Mayo. I'm sure that'd be a great place to go. Being that you are in Nashville, I have been seeing Dr. Meyer at UAB on Birmingham. He's knowledgable on this issue and is fairly geographically close to you if that helps you. I am only 6 months post-op but am seeing small improvement already.

Dr Tiel has been a tbpi specialist for longer than any other doctor I know of in the USA but has the reputation of being conservative. He is also extremely ethical and won't recommend costly surgery if the benefits are not likely to be great. The Mayo are the top team as far as more recent experience goes and they are highly rated by people posting here. Their team approach seems to be a huge advantage, tbpi being so very complex and needing such prolonged and difficult surgery. See whoever you can, but experience in tbpi is the most important factor.
Good luck!
JenNZ