UBPN CONNECTIONS NEWSLETTER
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
UBPN CONNECTIONS NEWSLETTER
Great Job and Newsletter!
Thanks Kim and BOD who put it together..
JudyT... I am NOT artistic, but I do want a Tee Shirt that says GUTSY BPI LADY on it for Awareness and I would need 7 of them as I would NEVER take it off!
HUGS,
Carolyn J
LOBPI/70
Thanks Kim and BOD who put it together..
JudyT... I am NOT artistic, but I do want a Tee Shirt that says GUTSY BPI LADY on it for Awareness and I would need 7 of them as I would NEVER take it off!
HUGS,
Carolyn J
LOBPI/70
Carolyn J
Adult LOBPI
Adult LOBPI
Re: UBPN CONNECTIONS NEWSLETTER
This was a pleasant surprise in my inbox this morning! Great job! Thank you to all involved for your time and efforts : )
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: UBPN CONNECTIONS NEWSLETTER
how can I receive the newsletter?
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
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KimW
- Posts: 58
- Joined: Fri May 09, 2008 9:24 pm
- Injury Description, Date, extent, surgical intervention etc: My daughter has a right obstetrical injury. She is 16.
Two surgeries include nerve graft and muscle release.
A great kid that plays soccer, rides horses, plays the piano
and clarinet.
Some Suggestions for Receiving Your E-news
We took our e-mail list from the message boards registration, so if you are registered here more than likely you are on the list.
If you didn't receive it you may want to check your "junk mail" folder to make sure it isn't there. If you have an e-mail account with AOL or Hotmail you will definitely need to add ubpn.org domain as a group you are willing to accept mail from. Many times AOL or Hotmail will block domains without your knowledge and you need to make a "whitelist" in order to receive certain emails.
A variety of other issues can come into play, including full servers, message backlog, etc. However, if you've taken all these steps and still don't receive the newsletter be sure to let me know and I will add you to our database.
We hope to have the new web design up and running shortly and it will include an e-newsletter subscription form as another option. But we decided not to wait and get our first issue out!
Kim
If you didn't receive it you may want to check your "junk mail" folder to make sure it isn't there. If you have an e-mail account with AOL or Hotmail you will definitely need to add ubpn.org domain as a group you are willing to accept mail from. Many times AOL or Hotmail will block domains without your knowledge and you need to make a "whitelist" in order to receive certain emails.
A variety of other issues can come into play, including full servers, message backlog, etc. However, if you've taken all these steps and still don't receive the newsletter be sure to let me know and I will add you to our database.
We hope to have the new web design up and running shortly and it will include an e-newsletter subscription form as another option. But we decided not to wait and get our first issue out!
Kim
Kim West
"Children are likely to live up to what you believe of them." Lady Bird Johnson
"Children are likely to live up to what you believe of them." Lady Bird Johnson
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Yaritsi's Mom
- Posts: 34
- Joined: Fri Jan 18, 2008 2:56 am
Re: Some Suggestions for Receiving Your E-news
Kim,
Please add me to the list.
Thanks.
Lupe
Please add me to the list.
Thanks.
Lupe
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: Some Suggestions for Receiving Your E-news
I am registered here, but I am affraid I might have deleted it, I always delete spam with out looking. I deleted it before i read this. Can you send it to me agian please!!!
Thank you!!!
Thank you!!!
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PRISCILLA
- Posts: 100
- Joined: Sun Feb 15, 2004 5:43 pm
- Injury Description, Date, extent, surgical intervention etc: Son, traumatic injured (TBPI) - November 2003. 3 surgeries to date.
- Location: North Carolina
Re: UBPN CONNECTIONS NEWSLETTER
Thanks for the newsletter and to all that put it together !
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: UBPN CONNECTIONS NEWSLETTER
Nope, never got it... not in my junk folders either..
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: UBPN CONNECTIONS NEWSLETTER
Great job on the Newsletter!
I'm so happy about this new method of communication and thank the BOD for moving forward with it.
Kath robpi/adult
I'm so happy about this new method of communication and thank the BOD for moving forward with it.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
