United Brachial Plexus Network

Hi everyone, This is not medical advice. I am only sharing our experience. My husband has had this TBPI for 9years now and everyday he has had to take OxyContin (and other drugs) for the relentless, excruciating pain. You know what I'm talking about. You also know the body builds a tolerance, very q...

Hi Brian, It's been a while since you posted this. What did you decide to do? My husband got his TBPI in an accident in Aug 2004 and had his left arm amputated in Aug 2008. He doesn't think it gave him any more phantom pain but it sure gave him more mobility and balance. He has no regrets. The arm g...

Hi Jmar, The Nov 5 date for the SGB was postponed til the 13th by the doctor, but on the 6th he was given a Medial Branch Block in trial for Radio Frequency Ablation (where they electrocute/burn the nerve). The first block was unsuccessful so there's no point going any further with that. The SGB on ...

Thanks for that info. We have just booked in again for SGB under guided imagery on Mon 5th. Will keep you posted! KT

Hi Jmar, We were booked in Tues 23rd for the SG Block (through our GP's specialists) but our pain specialist said that studies showed only 2% success rate in 'normal' necks. My husband's neck is skewiff due to the injury, so we chickened out. The specialist has given us a referral for radio frequenc...

Jmar, thank you for your reply; it was actually your post that we read and were encouraged by. What operation did you have? My husband is waiting to have surgery mid next year for a Peripheral Nerve Stimulator. I thought the SGB was the reason you have less pain and we hoped he would not need surger...

My husband is hoping to have a Stellate Ganglion Block in the hope he'll get some real pain relief. The doctors near us (Sunshine Coast, Qld, Australia) say it won't last very long but, after 8 years of living with this, we are desperate for more than all the drugs can offer. We've read a post here ...

Welcome, James. Yes, this is a very informative site and has given me much info to research and talk to the dr & specialist about. The decision to amputate your arm has to be well thought out (no sewing it back on!) but my husband found that his balance and mobility returned after his amputation...

Just wondering if anyone on this site is in Australia. There are a lot of people on this site from America and there seems to be much better treatment for TBPI over there than here, so far as I can research. However, affording the health care as an international patient is not possible on a disabili...

Hi Andrew, Since you're in the UK, have you spoken to anyone from the TBPI Group there? They're a registered charity and have get-togethers at different times and places I the UK. Their website has articles and links to other sites (which is where I found this one). Worth checking out, since you liv...